Cele mai bune Epilepsy podcast-uri (2024)

1
More than seizures: Ben opens up about mental health 28:06

18d ago28:06

28:06

Meet Ben, our latest #TalkEpilepsyPodcast guest, as he opens up about his powerful journey with epilepsy and mental health. n this raw and honest episode, Ben shares:• His diagnosis at age 14• The unexpected emotional challenges• How he found his way forward• Insights that could help others on similar paths If you are struggling with your mental he…

1
SUDEP Action Day 17:38

1M ago17:38

17:38

In this episode, we talk about Sudden Unexpected Death in Epilepsy (SUDEP). Sadly, almost 300 people a year die due to epilepsy in Scotland. Ahead of SUDEP Action Day on Wednesday 16 October, we talked to Sammy Ashby, Chief Executive at SUDEP Action. We discussed the work that SUDEP Action does to help bereaved families and this year's #OurRisksOur…

1
When Julia's world turned upside down: A mother's journey through epilepsy and autism 20:56

2M ago20:56

20:56

Imagine your teenage son's life suddenly interrupted by epilepsy. This was Julia's reality in 2020 when Andrew, just 17, was diagnosed with epilepsy after experiencing tonic-clonic seizures. In our latest #TalkEpilepsyPodcast, she opens up about the unique challenges of navigating not only epilepsy but also autism in her son's life. How does a moth…

1
Epilepsy and driving 9:56

3M ago9:56

9:56

In this episode, we talk to Epilepsy Scotland's Helpline and Information Officer Stuart on the topic of epilepsy and driving. We discuss some of the most common questions and the support that is available if someone living with epilepsy has to give up their driving licence.

1
Epilepsy and career 29:55

6M ago29:55

29:55

In this episode, we talk to BBC Radio London Football Commentator Karl Bates about his experiences of living with epilepsy and the challenges he has faced throughout his career because of his epilepsy.

1
Different seizure types 13:05

8M ago13:05

13:05

In this episode, we talk to Epilepsy Scotland’s Helpline and Information Officer, Uschi, about the most common types of seizures and how people can help someone if they had a seizure.

1
Hope to Cope On A Day You Barely Stand 10:02

11M ago10:02

10:02

Ever wondered what life feels like for someone with Epilepsy the day after a big tonic clonic fit and some bad injuries? It's not not always easy to get the words out so forgive me if I wobble....physically and mentally! Surviving an Epilepsy Alert Dog...yes, no, maybe? You though every day was chaos with the dog, now wait until you have fits and a…

1
Stigma 15:27

11M ago15:27

15:27

For all those of us who have have encountered Epilepsy, stigma continues to be one of the biggest hurdles. Not only do we have to cope with the condition itself, we have to deal with the way it is perceived. Unfortunately, in my experience, public perceptions of Epilepsy are moving at a sloth's pace in many realms! Surviving an Epilepsy Alert Dog..…

1
Training an Epilepsy Dog 14:32

12M ago14:32

14:32

Right, you've got the Assistance Dog....now you have to train it! This podcast tells you where to start, what I did wrong, what hopefully I did right and made me realise more than ever you never stop learning as a dog owner. Surviving an Epilepsy Alert Dog...yes, no, maybe? You though every day was chaos with the dog, now wait until you have fits a…

1
Is an Epilepsy Alert Dog For You? 11:14

12M ago11:14

11:14

There are some things that don't work with Epilepsy....hangovers, babies and hyperactive puppies who tear your house apart, crunch ice cubes and gnaw on your new cupboards. You need to really want a dog if you have Epilepsy because there are going to be some days you can barely move and your dog still needs to be walked. Are you ready for that? We …

1
Epilepsy Scotland’s Youth Group adventure weekend appeal 42:02

12M ago42:02

42:02

We talk to Epilepsy Scotland’s Youth Development Worker, Kirstyn Cameron, about Epilepsy Scotland’s Youth Work service and the benefits that the Youth Group adventure weekend brings to young people living with epilepsy. We also talk to Epilepsy Scotland’s fundraising team members Linzi Donald and Jane Roberts about the CrowdFunder that has been set…

1
Coping With Stress 11:25

12M ago11:25

11:25

Ever wondered how other people with Epilepsy cope or what you can do to help support yourself and your fits? Franziska has had fits for nearly 30 years and this podcast gives the listener some insight into the way she and her family deal with her daily seizures. Some days are great, other days are catastrophic. Every day is different! Coping with S…

1
Ella and the Electric Paintbrush 23:16

1y ago23:16

23:16

We talk to 13-year-old Ella, her mother Katherine and journalist and author Fraser who have written a book called Ella and the Electric Paintbrush which is based on Ella’s experiences of living with epilepsy. You can buy the book on Amazon and follow Ella on Instagram @adventure.ella

1
Social Support and Epilepsy 22:03

1y ago22:03

22:03

Welcome to Season Two, Episode Three of our three-part student podcast series Living with Epilepsy: The Student Experience. In this episode, our student ambassador Chloe meets with graduate Abigail Clifford to discuss social support and epilepsy . To find out more about Epilepsy Scotland's #StudentSeptember campaign, please go to www.epilepsyscotla…

1
ADHD, OCD, and Epilepsy 9:06

1y ago9:06

9:06

Welcome to Season Two, Episode Two of our three-part student podcast series Living with Epilepsy: The Student Experience. In this episode, our student ambassador Freya discusses Attention Deficit Hyperactivity Disorder (ADHD), Obsessive-Compulsive Disorder (OCD) and Epilepsy. To find out more about Epilepsy Scotland's #StudentSeptember campaign, pl…

1
Sleep, stress and epilepsy 42:37

1y ago42:37

42:37

Welcome to Season Two, Episode One of our three-part student podcast series Living with Epilepsy: The Student Experience. In this episode, our student ambassador Chloe met with Psychologist Junhua Ding to discuss sleep, stress and epilepsy. To find out more about Epilepsy Scotland's #StudentSeptember campaign, please go to www.epilepsyscotland.org.…

1
Epilepsy and SUDEP - Dianne’s story 32:22

1+ y ago32:22

32:22

In this episode, our Fundraising Manager Gemma Fleet talks to Dianne who’s daughter Emma sadly passed away due to Sudden Unexplained Death In Epilepsy (SUDEP) in April 2023. Dianne shares her memories of Emma. Her life living with epilepsy and how she would like Emma to be remembered. If you have lost a loved one due to SUDEP and need to talk to so…

1
Importance of epilepsy training 10:25

1+ y ago10:25

10:25

In this episode, we talk to Epilepsy Scotland Training Manager Naomi Stevenson about the importance of learning about epilepsy and how the condition can affect someone. Also, whether society as a whole has an understanding of epilepsy and the training that Epilepsy Scotland provides.

1
#EpilepsyOnTheMind 16:53

1+ y ago16:53

16:53

In this episode, we talk to Niamh a member of our Youth Group in Edinburgh. Niamh shares her experiences of living with epilepsy and the impact it has had on her mental health.

1
#EpilepsyMatters 39:49

1+ y ago39:49

39:49

During National Epilepsy Week, we teamed up with epilepsy organisations across the UK to launch the #EpilepsyMatters campaign. In this episode, we speak to Claire and Holly who share their experiences of living with epilepsy.

1
10 Frequently Asked Questions about epilepsy 13:48

1+ y ago13:48

13:48

In this episode, we talk to Epilepsy Scotland’s Helpline and Information Officer Uschi about the 10 most frequently asked questions about epilepsy that we receive via our freephone Helpline.

1
Mental health and epilepsy 38:37

2y ago38:37

38:37

In this episode, we talk to SNP MSP Alasdair Allan about how he felt when he was diagnosed with epilepsy and the mental health issues that people with epilepsy can face. We also talk to Epilepsy Scotland’s Wellbeing Manager, Vicki Burns about how an epilepsy diagnosis can impact a person’s mental health and the help and support that can be provided…

1
#BecauseOfEpilepsyScotland Niamh’s story 20:37

2y ago20:37

20:37

Our Youth Group member Niamh shares how she felt when she was diagnosed with epilepsy and how being apart of the Epilepsy Scotland Youth Group has helped her. Please help us continue to be there for people like Niamh by donating to our Christmas Appeal by texting BECAUSE to 70085 to donate £3.

1
Ben’s epilepsy story 32:08

2y ago32:08

32:08

In this episode, we talk to Ben who was diagnosed with epilepsy when he was 14 years old. Ben shares his experiences of having tonic-clonic seizures. The challenges he has faced and how he went a period of being seven years seizure free and how he felt when he started to have seizures again.

1
Changing Medication 11:28

2y ago11:28

11:28

Changing Medication has to be be one of the hardest things things to do. As I sit here, the first week of half term, my vision blurred for the second full day in a row I wonder what can be done. I don't want to live like this. I don't want my children to live like this, but there are no other medications I can take. I'm stuck between a rock and a h…

1
Memory...And so it doesn't continue 13:54

2y ago13:54

13:54

What if it didn't continue? What if you couldn't remember all the things you were supposed to? The following podcast is a light hearted look at what awaits someone who takes Anti Epileptic Drugs (AED's). Why light hearted? Because in these situations, your humour is often all you have. Especially if you start the day every morning with an almost 'b…

1
Memory Loss and Epilepsy: Can't remember Anything 8:47

2y ago8:47

8:47

The loss of memory is an ongoing dilemma for people with Epilepsy. Some medications are known to cause confusion and memory loss, but added to this, the condition itself causes the brain function to deteriorate over time. It's logical. What's easy for you, becomes virtually impossible for me. Continually falling on your head, banging your head or s…

1
Odds and Ends: Living with Memory loss and Epilepsy Part 2 12:37

2y ago12:37

12:37

What would it be like to live without Epilepsy? As I write this I haven't had a Tonic Clonic fit for six months. I'm still having regular Partial fits, my head gets fuzzy-I wander around in circles. I get off the bus, but don't remember why, I look confused enough to have people come up to me, ask me if I'm ok. 'I don't know. I don't remember. Mayb…

1
Epilepsy and Moods 11:43

2y ago11:43

11:43

It's not easy living with Epilepsy; it's definitely not easy living with mood changes. In this episode Franziska talks about her experiences over the years and how she has learnt to cope with the ups and downs of fits- from medication side effects to the seizures themselves and everything in between. Mood changes involve every one in your life and …

1
#StudentSeptember Episode 3 - Epilepsy and the Student Social Life 6:46

2y ago6:46

6:46

The final episode of a three-part episode series called 'Living with Epilepsy: The Student Experience'. Here, Monica Sgouros volunteered to share her experiences of organising epilepsy friendly club nights.

1
#StudentSeptember Episode 2 - Epilepsy, Mental Health, and Support 19:47

2y ago19:47

19:47

The second episode of a three-part episode series called 'Living with Epilepsy: The Student Experience'. Here, Jacob Goss, a student with epilepsy, volunteered to speak with us about his experience of university.

1
#StudentSeptember Episode 1 - Epilepsy, Cognition, and Learning 18:49

2y ago18:49

18:49

The first episode of a three-part episode series called 'Living with Epilepsy: The Student Experience'. Here, Louise Shambrook, volunteered to speak with us about her experiences of epilepsy and learning.

1
Voice Epilepsy Episode 26: Driving and Epilepsy 12:30

2+ y ago12:30

12:30

In this episode of the Voice Epilepsy™ podcast, BC Epilepsy Society staff members, Sonia Ali and Christine Jamieson discuss driving and epilepsy, including how a person living with epilepsy can obtain their driver’s license in the province of British Columbia, as well as some transportation tips for people living with epilepsy who may be unable to …

1
Voice Epilepsy Episode 25: Discussion on the Seizing Hope Documentary with Dr. Judy Illes from Neuroethics Canada 38:02

2+ y ago38:02

38:02

In this episode of the Voice Epilepsy™ podcast, BC Epilepsy Society Executive Director, Deirdre Syms, is joined by Dr. Judy Illes to discuss Seizing Hope - High Tech Journeys in Pediatric Epilepsy, a mini-documentary by Neuroethics Canada. Seizing Hope is a mini-documentary that aims to ask the question “Can new technology bring hope to children wh…

1
Voice Epilepsy Episode 24: Interview with Niomi Ndirangu, Miss Kansas’ Outstanding Teen 2022 11:41

2+ y ago11:41

11:41

In this episode of the Voice Epilepsy™ podcast, BC Epilepsy Society Executive Director, Deirdre Syms is joined by Niomi Ndirangu, who is the 2022 winner of the Miss Kansas’ Outstanding Teen pageant and is a person living with epilepsy. Listen to this podcast to hear Niomi discuss her win and how she made history as the first African American Miss K…

1
Voice Epilepsy Episode 23: Information on the Registered Disability Savings Plan (RDSP) 7:15

2+ y ago7:15

7:15

In this episode of the Voice Epilepsy™ podcast, Sharareh Saremi, an Advocate at Disability Alliance BC, joins us to discuss the Registered Disability Savings Plan (RDSP). If you would like to learn more about the provincial and federal disability benefits available to people living with epilepsy in BC, visit the Disability Alliance BC website at ww…

1
Voice Epilepsy Episode 22: Information on the Disability Tax Credit (DTC) 7:47

2+ y ago7:47

7:47

In this episode of the Voice Epilepsy™ podcast, Sharareh Saremi, an Advocate at Disability Alliance BC, joins us to discuss the Disability Tax Credit (DTC). If you would like to learn more about the provincial and federal disability benefits available to people living with epilepsy in BC, visit the Disability Alliance BC website at www.disabilityal…

1
Voice Epilepsy Episode 21: Information on Canada Pension Plan Disability (CPP-D) Benefits 12:20

2+ y ago12:20

12:20

In this episode of the Voice Epilepsy™ podcast, Sharareh Saremi, an Advocate at Disability Alliance BC, joins us to discuss Canada Pension Plan Disability (CPP-D). If you would like to learn more about the provincial and federal disability benefits available to people living with epilepsy in BC, visit the Disability Alliance BC website at www.disab…

1
Voice Epilepsy Episode 20: Information on the Persons With Disabilities (PWD) Designation 11:33

2+ y ago11:33

11:33

In this episode of the Voice Epilepsy™ podcast, Sharareh Saremi, an Advocate at Disability Alliance BC, joins us to discuss the Persons With Disabilities (PWD) Designation. If you would like to learn more about the provincial and federal disability benefits available to people living with epilepsy in BC, visit the Disability Alliance BC website at …

1
Voice Epilepsy Episode 19: UBC Interprofessional Health Mentors Program Seeks BC Epilepsy Patient Participation 34:49

2+ y ago34:49

34:49

In this episode of the Voice Epilepsy™ podcast, BC Epilepsy Society Executive Director, Deirdre Syms is joined by the Director of the UBC Interprofessional Health Mentors Program, Dr. Angela Towle, PhD, and long-standing Health Mentor, Lelainia Lloyd to discuss the UBC Interprofessional Health Mentors Program. The UBC Interprofessional Health Mento…

1
Voice Epilepsy Episode 18: Adult Epilepsy Surgery 1:02:50

2+ y ago1:02:50

1:02:50

For some adults living with epilepsy, epilepsy surgery may be a potential option for seizure control. Our podcast on adult epilepsy surgery, entitled “An Overview of Adult Epilepsy Surgery” features the expertise of Dr. Chantelle Hrazdil, MD, FRCPC, who is a pediatric epileptologist at Vancouver General Hospital. Listen to this podcast to learn abo…

1
Voice Epilepsy Episode 17: Pediatric Epilepsy Surgery 47:05

2+ y ago47:05

47:05

For some children and youth living with epilepsy, epilepsy surgery may be a potential option for seizure control. Our podcast on pediatric epilepsy surgery, entitled “Epilepsy Surgery in Children and Youth: The Benefits of Early Surgery”, features the expertise of Dr. Mary Connolly, MB, BCh, BAO, FRCP(C), FRCP(I), FRCP(Edin) who is a pediatric epil…

1
Voice Epilepsy Episode 16: Service Dogs for People with Epilepsy 16:35

2+ y ago16:35

16:35

In this episode of the Voice Epilepsy™ podcast, BC Epilepsy Society staff members, Sonia Ali and Christine Jamieson discuss service dogs for people with epilepsy, which are known as Seizure Response Dogs. Listen to this podcast to learn more about what a Seizure Response Dog is and does, as well as information on owning, training, certifying, and o…

1
#ExcelWithEpilepsy 25:34

2+ y ago25:34

25:34

In this episode, we chat to comedian Jake Lambert about his experiences of living with epilepsy and his new Edinburgh Fringe show where he will be talking about his epilepsy. We also talk to Leon Legge about how he manages his epilepsy as well as playing professional sport as part of our #ExcelWithEpilepsy campaign.…

1
Preparing for an Interview 9:07

2+ y ago9:07

9:07

Preparing for an interview can be hard when you have Epilepsy especially as nerves make fits worse. Surviving an Epilepsy Alert Dog...yes, no, maybe? You though every day was chaos with the dog, now wait until you have fits and a four-legged friendDe către Franziska Thomas

1
Working With Epilepsy 7:59

2+ y ago7:59

7:59

Finding work with Epilepsy is not easy. Aside from the seizures themselves there is the medication side effects and exhaustion, but you are not alone. Surviving an Epilepsy Alert Dog...yes, no, maybe? You though every day was chaos with the dog, now wait until you have fits and a four-legged friendDe către Franziska Thomas

1
Purple Day 2022 27:37

2+ y ago27:37

27:37

In this special Purple Day episode, we talk to our volunteers Dave and Amy who share their experiences of living with epilepsy and how important awareness days like Purple Day are to help promote awareness of epilepsy.

1
Self Esteem and Epilepsy 8:54

2+ y ago8:54

8:54

Self Esteem is one of the biggest battles people with Epilepsy fight. Listen to Fran's podcast for tips on how to improve your self esteem today! Surviving an Epilepsy Alert Dog...yes, no, maybe? You though every day was chaos with the dog, now wait until you have fits and a four-legged friendDe către Franziska Thomas

1
How To Explain Epilepsy To Others 9:43

2+ y ago9:43

9:43

How would you describe your Epilepsy to others if asked? Would you sound confident? Concerned? Listen to some tips from Fran. Surviving an Epilepsy Alert Dog...yes, no, maybe? You though every day was chaos with the dog, now wait until you have fits and a four-legged friendDe către Franziska Thomas

1
Caring for Someone With Epilepsy 7:11

2+ y ago7:11

7:11

Caring for someone with Epilepsy is rewarding, but make no mistake it can be hard for both sides. Fran has been living with Refractory Epilepsy for over 25 years and still has melt downs! Surviving an Epilepsy Alert Dog...yes, no, maybe? You though every day was chaos with the dog, now wait until you have fits and a four-legged friend…

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