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This is a mostly upbeat, sometimes downbeat, look at my life with Chronic Lymphocytic Leukemia a.k.a, CLL. Though CLL could also stand for "Could'a Lived Longer," I believe you can still have a life well-lived despite your CLL. I hope hearing about my journey will encourage you on your walk with leukemia.
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CancerCare's free Connect Education Workshops are a way for people to learn about cancer-related issues from the convenience of their home or office. Leading experts in oncology provide the most up-to-date information in these workshops to help you and your loved ones better understand and cope with your cancer diagnosis, treatment options, quality-of-life concerns, treatment side effects, pain management, doctor-patient communication and other important topics.
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CancerCare's free Connect Education Workshops are a way for people to learn about cancer-related issues from the convenience of their home or office. Leading experts in oncology provide the most up-to-date information in these workshops to help you and your loved ones better understand and cope with your cancer diagnosis, treatment options, quality-of-life concerns, treatment side effects, pain management, doctor-patient communication and other important topics.
  continue reading
 
CancerCare's free Connect Education Workshops are a way for people to learn about cancer-related issues from the convenience of their home or office. Leading experts in oncology provide the most up-to-date information in these workshops to help you and your loved ones better understand and cope with your cancer diagnosis, treatment options, quality-of-life concerns, treatment side effects, pain management, doctor-patient communication and other important topics.
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This space is dedicated to supporting parents and families while their child is going through treatments for pediatric cancer and beyond. This podcast uses the following third-party services for analysis: Podcorn - https://podcorn.com/privacy Chartable - https://chartable.com/privacy
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Hoe kun je je leven steeds leuker maken met verrassend weinig moeite? In Steeds leuker (de podcast van soChicken) duik ik - Jelle Hermus - meestal samen met mijn goede vriendin Sarra Wijnmaalen in een onderwerp dat ons bezighoudt. We delen persoonlijke verhalen, ik maak flauwe grappen, Sarra doet alsof ze erom moet lachen – en dan doen we nog ook ons best om je te voorzien van tips en inzichten. Gezellig voor tijdens een wandeling, je work-out, een autorit of tijdens het koken of strijken. W ...
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In de Werk aan Leuk Werk Podcast is er regelmaat een interessante gast samen met mij, Simon van Esch, #1 bestsellerauteur van het boek Hoezo Hiërarchie. We bespreken zaken als werkplezier, het hogere doel van werk, engagement, recruitment en wat er maar voorbij komt.
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Elke week inspireer ik met unieke, inspirerende en bijzondere mensen of inzichten vrouwen die (nog) niet alles uit het leven halen. Mijn missie is vrouwen te laten zien en ontdekken dat het leven pas écht leuk wordt als je doet waar je van houdt. Mijn visie hierop en de inspirerende mensen die ik hiervoor interviewen zullen je helpen hier ook voor te kunnen gaan. Thema’s als zekerheid, gezondheid, financiën en jezelf kleinhouden komen hierbij aanbod. Het belangrijkste doel is dat je gaat inz ...
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My daughter, her husband, and their two children moved in with us while their new house was being built. This physical closeness (there were six of us in a very small house!) gave us all a chance to develop a spiritual closeness as well. My daughter has a wonderful heart and cares deeply about almost everything. I, of course, already knew this – I …
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- Review of Chronic Lymphocytic Leukemia- Significant Role of Testing in Informing Treatment Choices- First-Line Treatment Options- Treatment for Relapsed & Refractory CLL- Re-Testing Importance in Determining Treatment for 2nd & 3rd Line Treatments- Current Perspectives on New & Emerging Treatments of CLL- Updates on Clinical Trials & Their Signif…
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- Review of Chronic Lymphocytic Leukemia- Significant Role of Testing in Informing Treatment Choices- First-Line Treatment Options- Treatment for Relapsed & Refractory CLL- Re-Testing Importance in Determining Treatment for 2nd & 3rd Line Treatments- Current Perspectives on New & Emerging Treatments of CLL- Updates on Clinical Trials & Their Signif…
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I just came up with the perfect distraction to take my mind off leukemia. Although I wouldn’t recommend it to anyone else. Last week I was trying to unhook a utility trailer from my car. As soon as the trailer left the car's hitch it rolled forward and, like the idiot I am, I tried to stop it. The next thing I knew the tongue of the trailer fell, c…
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- Definition of a Caregiver- What Research Tells Us About Caregivers’ Well Being- Caregiving for an Older Adult- Caregiving for a Younger Adult- Couples, Partners, Siblings, & Friends- Challenges for Caregivers of Cancer Survivors- Family, Partner, & Friend Communication- Care Coordination Challenges & Tips- Stresses on Family, Partners, Friends, &…
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- Definition of a Caregiver- What Research Tells Us About Caregivers’ Well Being- Caregiving for an Older Adult- Caregiving for a Younger Adult- Couples, Partners, Siblings, & Friends- Challenges for Caregivers of Cancer Survivors- Family, Partner, & Friend Communication- Care Coordination Challenges & Tips- Stresses on Family, Partners, Friends, &…
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- Definition of a Caregiver- What Research Tells Us About Caregivers’ Well Being- Caregiving for an Older Adult- Caregiving for a Younger Adult- Couples, Partners, Siblings, & Friends- Challenges for Caregivers of Cancer Survivors- Family, Partner, & Friend Communication- Care Coordination Challenges & Tips- Stresses on Family, Partners, Friends, &…
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Like so many things in life, leukemia brings change. When CLL came into my life, I still felt the same physically. But in my head I felt suddenly different. I knew the future was no longer going to go as I'd planned. The question was, and still is, how will I deal with that change? Do I fight it or embrace it? Do I let fear and doubt rule me, or do…
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- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects & Pain Management- What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care- What to Consider When Selecting a Cancer Care Team & Treatmen…
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- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects & Pain Management- What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care- What to Consider When Selecting a Cancer Care Team & Treatmen…
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- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects & Pain Management- What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care- What to Consider When Selecting a Cancer Care Team & Treatmen…
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- Overview of Common Eye & Vision Changes Related to Cancer Treatments- Discussion of Common Eye & Vision Changes, Including Causes & Risk Factors- Tips to Manage Dry Eyes, Watery Eyes, Itching Eyes, Blepharitis, Loss of Eyelashes, Changes in Vision, Cataracts, Floaters, & Flashing Lights- The Role of the Multidisciplinary Team- Tips to Manage Low …
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- Overview of Common Eye & Vision Changes Related to Cancer Treatments- Discussion of Common Eye & Vision Changes, Including Causes & Risk Factors- Tips to Manage Dry Eyes, Watery Eyes, Itching Eyes, Blepharitis, Loss of Eyelashes, Changes in Vision, Cataracts, Floaters, & Flashing Lights- The Role of the Multidisciplinary Team- Tips to Manage Low …
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- Overview of Common Eye & Vision Changes Related to Cancer Treatments- Discussion of Common Eye & Vision Changes, Including Causes & Risk Factors- Tips to Manage Dry Eyes, Watery Eyes, Itching Eyes, Blepharitis, Loss of Eyelashes, Changes in Vision, Cataracts, Floaters, & Flashing Lights- The Role of the Multidisciplinary Team- Tips to Manage Low …
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- Overview of CAR T-Cell Therapies- Understanding CARS – Chimeric Antigen Receptors- When to Consider CAR T-Cell Therapies as a Treatment Choice- Clinical Trials for CAR T-Cell Therapies- Discussion of CAR T-Cell Therapies- Managing Potential Treatment Side Effects- Specific Examples of How CAR T-Cell Therapies Contribute to Oncology Care- Key Ques…
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- Overview of CAR T-Cell Therapies- Understanding CARS – Chimeric Antigen Receptors- When to Consider CAR T-Cell Therapies as a Treatment Choice- Clinical Trials for CAR T-Cell Therapies- Discussion of CAR T-Cell Therapies- Managing Potential Treatment Side Effects- Specific Examples of How CAR T-Cell Therapies Contribute to Oncology Care- Key Ques…
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- Overview of CAR T-Cell Therapies- Understanding CARS – Chimeric Antigen Receptors- When to Consider CAR T-Cell Therapies as a Treatment Choice- Clinical Trials for CAR T-Cell Therapies- Discussion of CAR T-Cell Therapies- Managing Potential Treatment Side Effects- Specific Examples of How CAR T-Cell Therapies Contribute to Oncology Care- Key Ques…
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- Overview of the Different Names for Biomarker Testing & Why They Can Be Helpful for Treatment- Tumor Marker Testing, Genomic Profiling, Genomic Sequencing, Molecular Profiling, Next Generation Sequencing- The Relationship Between Biomarker Testing & Precision Medicine- Types of Biomarker Tests for Cancer Treatment- Do I Need Biomarker Testing for…
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- Overview of the Different Names for Biomarker Testing & Why They Can Be Helpful for Treatment- Tumor Marker Testing, Genomic Profiling, Genomic Sequencing, Molecular Profiling, Next Generation Sequencing- The Relationship Between Biomarker Testing & Precision Medicine- Types of Biomarker Tests for Cancer Treatment- Do I Need Biomarker Testing for…
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- Overview of the Different Names for Biomarker Testing & Why They Can Be Helpful for Treatment- Tumor Marker Testing, Genomic Profiling, Genomic Sequencing, Molecular Profiling, Next Generation Sequencing- The Relationship Between Biomarker Testing & Precision Medicine- Types of Biomarker Tests for Cancer Treatment- Do I Need Biomarker Testing for…
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- Overview of Acute Lymphocytic/Lymphoblastic Leukemia (ALL) in Adults- Current Standard of Care- Treatment Updates- Therapy for Relapsed/Refractory ALL- New Treatment Approaches & Targeted Therapy- Clinical Trial Updates- How Research Contributes to Treatment Options- Managing Complications & Side Effects of ALL & its Treatment- Quality-of-Life Co…
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- Why Chemotherapy Causes Treatment Side Effects & Discomfort- Working with Your Healthcare Team to Better Understand & Cope with Potential Treatment Side Effects with a Plan to Manage or Prevent Them - Common Treatment Gastrointestinal (GI) Side Effects - You May Not Experience All of These - Loss of Appetite, Nausea, Vomiting, Mouth Sores, Stomat…
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- Why Chemotherapy Causes Treatment Side Effects & Discomfort- Working with Your Healthcare Team to Better Understand & Cope with Potential Treatment Side Effects with a Plan to Manage or Prevent Them - Common Treatment Gastrointestinal (GI) Side Effects - You May Not Experience All of These - Loss of Appetite, Nausea, Vomiting, Mouth Sores, Stomat…
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- Why Chemotherapy Causes Treatment Side Effects & Discomfort- Working with Your Healthcare Team to Better Understand & Cope with Potential Treatment Side Effects with a Plan to Manage or Prevent Them - Common Treatment Gastrointestinal (GI) Side Effects - You May Not Experience All of These - Loss of Appetite, Nausea, Vomiting, Mouth Sores, Stomat…
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- Overview and Definition of Biomarkers- What Are Some Examples of Biomarker Testing- How Biomarker Testing Provides Useful Information for Cancer Treatment - Why the Molecular Portrait of Cancer Is So Important- The Role of the Pathologist- Benefits of Biomarker Testing & Precision Medicine- Predicting Response to Treatment- Clinical Trials: How R…
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- Overview and Definition of Biomarkers- What Are Some Examples of Biomarker Testing- How Biomarker Testing Provides Useful Information for Cancer Treatment - Why the Molecular Portrait of Cancer Is So Important- The Role of the Pathologist- Benefits of Biomarker Testing & Precision Medicine- Predicting Response to Treatment- Clinical Trials: How R…
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- Overview and Definition of Biomarkers- What Are Some Examples of Biomarker Testing- How Biomarker Testing Provides Useful Information for Cancer Treatment - Why the Molecular Portrait of Cancer Is So Important- The Role of the Pathologist- Benefits of Biomarker Testing & Precision Medicine- Predicting Response to Treatment- Clinical Trials: How R…
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- Unique Needs of Young Adult Cancer Survivors- Identity, Relationships & Intimacy- Dating- Couples/Partners Dealing with Survivorship- Communicating about Sex- Sexuality & Intimacy- Sex Drive: Ability & Desire- Tips to Deal with Vaginal Dryness, Premature Menopause, Erectile Dysfunction, Premature Ejaculation & Sperm Banking- Low Desire: How to Ge…
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- Unique Needs of Young Adult Cancer Survivors- Identity, Relationships & Intimacy- Dating- Couples/Partners Dealing with Survivorship- Communicating about Sex- Sexuality & Intimacy- Sex Drive: Ability & Desire- Tips to Deal with Vaginal Dryness, Premature Menopause, Erectile Dysfunction, Premature Ejaculation & Sperm Banking- Low Desire: How to Ge…
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- Unique Needs of Young Adult Cancer Survivors- Identity, Relationships & Intimacy- Dating- Couples/Partners Dealing with Survivorship- Communicating about Sex- Sexuality & Intimacy- Sex Drive: Ability & Desire- Tips to Deal with Vaginal Dryness, Premature Menopause, Erectile Dysfunction, Premature Ejaculation & Sperm Banking- Low Desire: How to Ge…
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- Overview of Cancer & the LGBTQI+ Community, Including HIV & HPV- The LGBTQI+ Community’s Disproportionate Cancer Burden- Addressing the LGBTQI+ Health Disparities Gap, Including Mistrust of Health Care Providers- Barriers to Health Care Access, Including Discrimination- Health Care, Cancer Screening, Palliative and Supportive Care, Affordable Hou…
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- Overview of Cancer & the LGBTQI+ Community, Including HIV & HPV- The LGBTQI+ Community’s Disproportionate Cancer Burden- Addressing the LGBTQI+ Health Disparities Gap, Including Mistrust of Health Care Providers- Barriers to Health Care Access, Including Discrimination- Health Care, Cancer Screening, Palliative and Supportive Care, Affordable Hou…
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- Overview of Cancer & the LGBTQI+ Community, Including HIV & HPV- The LGBTQI+ Community’s Disproportionate Cancer Burden- Addressing the LGBTQI+ Health Disparities Gap, Including Mistrust of Health Care Providers- Barriers to Health Care Access, Including Discrimination- Health Care, Cancer Screening, Palliative and Supportive Care, Affordable Hou…
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- Overview of Acute Lymphocytic/Lymphoblastic Leukemia (ALL) in Children- Current Standard of Care, Including Chemotherapy & New Treatment Approaches- Treatment of Recurrent ALL- Targeted Treatment & Stem Cell Transplantation- The Role of Clinical Trials in Childhood ALL- Preventing & Managing Treatment Side Effects, Discomfort & Pain- Follow-Up Ex…
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- Overview of Young Adults Living with Cancer, including Delays in Diagnosis- Where to Seek Cancer Treatment: Selecting Your Oncology Health Care Team, Including Young Adult Cancer Programs- The Importance of Treatment Summaries- Follow-Up with Your Oncologist & Primary Care Doctor- Managing Post Treatment Side Effects/Late Effects- Talking with th…
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- Overview of Young Adults Living with Cancer, including Delays in Diagnosis- Where to Seek Cancer Treatment: Selecting Your Oncology Health Care Team, Including Young Adult Cancer Programs- The Importance of Treatment Summaries- Follow-Up with Your Oncologist & Primary Care Doctor- Managing Post Treatment Side Effects/Late Effects- Talking with th…
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- Overview of Young Adults Living with Cancer, including Delays in Diagnosis- Where to Seek Cancer Treatment: Selecting Your Oncology Health Care Team, Including Young Adult Cancer Programs- The Importance of Treatment Summaries- Follow-Up with Your Oncologist & Primary Care Doctor- Managing Post Treatment Side Effects/Late Effects- Talking with th…
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- Overview of Blood Cancers, in the Context of COVID-19- New Research Presented at ASH- Disease-Specific Treatment Updates from ASH on Leukemia, Lymphoma, Multiple Myeloma and Myeloproliferative Neoplasms (MPN)- The Role of Precision Medicine & Clinical Trials- Talking with Your Health Care Team about Your Treatment Options- Communicating with Your…
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- Overview of Blood Cancers, in the Context of COVID-19- New Research Presented at ASH- Disease-Specific Treatment Updates from ASH on Leukemia, Lymphoma, Multiple Myeloma and Myeloproliferative Neoplasms (MPN)- The Role of Precision Medicine & Clinical Trials- Talking with Your Health Care Team about Your Treatment Options- Communicating with Your…
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- Overview of Blood Cancers, in the Context of COVID-19- New Research Presented at ASH- Disease-Specific Treatment Updates from ASH on Leukemia, Lymphoma, Multiple Myeloma and Myeloproliferative Neoplasms (MPN)- The Role of Precision Medicine & Clinical Trials- Talking with Your Health Care Team about Your Treatment Options- Communicating with Your…
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Yes, you have leukemia, but if you allow yourself to take your time you can accomplish more than you think. It's okay to take longer to do a project than it did before you had CLL. On today's episode I talk about my adventure tiling our bathroom. It took me three weeks! A job that most would do in a few days. Now, some of that time was spent learni…
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- Overview of Cancer Survivorship, in the Context of COVID- Managing Post Treatment Side Effects/Late Effects- Quality-of-Life Concerns- Fear of Recurrence- Finding Your New Normal- The Importance of Treatment Summaries & Encounter Notes- Follow-Up with Your Oncologist & Primary Care Doctor, including Discussion of Health Screening & Concerns- Guid…
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- Overview of Cancer Survivorship, in the Context of COVID- Managing Post Treatment Side Effects/Late Effects- Quality-of-Life Concerns- Fear of Recurrence- Finding Your New Normal- The Importance of Treatment Summaries & Encounter Notes- Follow-Up with Your Oncologist & Primary Care Doctor, including Discussion of Health Screening & Concerns- Guid…
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- Overview of Cancer Survivorship, in the Context of COVID- Managing Post Treatment Side Effects/Late Effects- Quality-of-Life Concerns- Fear of Recurrence- Finding Your New Normal- The Importance of Treatment Summaries & Encounter Notes- Follow-Up with Your Oncologist & Primary Care Doctor, including Discussion of Health Screening & Concerns- Guid…
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CLL leukemia, it ain't fun. Though my leukemia can seem like an invisible disease, sometimes leuk raises his ugly head and I just have to take a day off. That happened a couple days ago. So, of course it was a bit frustrating, but I didn't let it get to me. I didn't let leuk control my thoughts. It's okay to take some time off if you need to. Tomor…
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Those of us with CLL leukemia can tend to narrow our lives down, letting leuk change us. But there is a whole life out there that we shouldn't let go of. Recently I spent a day playing disk golf with a friend. I was reminded that there is more to me than the leukemia. I can't let my disease stop me from being who I am. Leuk may be changing me physi…
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