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The Rare Life

Madeline Cheney

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This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface fo ...
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RARECast

RARECast

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RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.
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Hosted by Dan Cleary, RFR is a comedy podcast that aims to be just that; in rare form. Sex, race, religion, conspiracy, controversy... nothing is off limits! The faint of heart need not apply. Follow us on Instagram & Twitter: @RareFormRadio - subscribe wherever you get your podcasts - Give us a rating & review if you'd be so kind.
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Rare with Flair

Casey Greer and Cassandra Mendez

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Casey + Cassandra are a pair of best friends with the same rare disease. Their goal is simple: sharing their lives to showcase the beauty and normalcy in disability, while having fun together. They’ll also touch on accessibility, friendships, style, and everything in between as they live their best, rare, lives! For show notes, go to rarewithflair.com
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A Podcast of Rare Antiquities

A Podcast of Rare Antiquities

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Welcome to A Podcast of Rare Antiquities! Host’s Harry and Geoff discuss and analyze film and television shows. This podcast mainly delves into more obscure and forgotten films but latest releases are sometimes covered. We hope this is the rare antiquity you are looking for.
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Rare Cuts Media Society

Rare Cuts Media Society

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Welcome to the Rare Cuts Media Society! A Book Club Style show where we dive into Movies, TV, Books, Music, and more. Each month one of us will choose a new piece of media to dive into and discuss. Make sure you watch, listen, and read along with us each month so you will be ready for our discussion. Warning: There will be Spoilers!
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Rare But Real

Audrey Broggi

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Young women have been growing up with an indoctrination of what womanhood is and what it should be. They've been taught everything that is in direct opposition to the Word of God. Young women who want to be different from the world are rare but they are real. Audrey Broggi will often be joined by her daughter and her daughters-in-law who desire to be discerning in a day when everything seems to go against God's design.
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Rarefied Podcast

Meredith Meeker

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This podcast is about rare and wonderful creatures that are at risk of disappearing and the amazing people working hard to save them! Have you ever wanted to know why they call the Loggerhead Shrike the Butcher Bird? Have you wondered where have all the bats gone? Or asked yourself what is being done to protect the creatures that can’t stand up for themselves? Well this is the podcast for you!
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Welcome to P4A Let’s Talk Rare, a monthly podcast highlighting the most important developments in the world of rare diseases orphan drug, cell and gene therapy, hosted by Georgie Rack and Owen Bryant of Partners For Access. To find out more about Partners For Access and our commitment to sustainable orphan drug access for patients with high unmet need, visit partners4access.com
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Formerly Nutrition Equity, rare connection is an extension of the podcast to include all 10,000 rare conditions and not just those covered by the Medical Nutrition Equity Act. Some of the conditions may be the same, but I am trying to turn this into a learning experience for those in the medical feild, policy leaders, and those who are just interested in hearing about rare conditions and patient stories. Rare conditions are called zebras hence the zebra striped ribbon. More common conditions ...
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Welcome to the new Rare Kidney Disease Show part of the RKD Scientific Network sponsored by Travere Therapeutics. The Rare Kidney Disease Show is your primary source for cutting-edge insights, expert perspectives, and pivotal updates in nephrology. Led by our panel of experts, explore the advances in glomerular nephropathies through compelling conversations, challenging case studies, and discussions tackling hot topics. Join us as we strive to provide you with the ultimate resource to suppor ...
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Rare Book Chat

Jeremy O'Connor and Michael DiRuggiero

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Dive deep into the fascinating world of rare books with Rare Book Chat. Hosted by Michael DiRuggiero and Jeremy O'Connor, the co-founders of The Manhattan Rare Book Company, this podcast explores the unique and often valuable items that fill the world of rare books, manuscripts, letters, photographs, archives, and more. From historical documents to literary first editions, we'll discuss the stories behind these one-of-a-kind treasures. Join us as we explore the intricacies of the rare book t ...
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I'm Aware That I'm Rare: the phaware® podcast

phaware global association

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I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because ea ...
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Patient Empowerment Program: A Rare Disease Podcast

n-Lorem Foundation (Dr. Stan Crooke, Amy Williford, Kim Butler, Andrew Serrano, Jon Magnuson, and Kira Dineen)

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Join the nano-rare disease community! Interviews features leading physicians, scientists, biotech experts, and patient advocates. Lessons teach core concepts about drugs. Our host Dr. Crooke has led the creation of antisense technology and his foundation, n-Lorem, is using this powerful technology to discover, develop, and provide personalized experimental antisense oligonucleotide medicines to nano-rare patients for free, for life. n-Lorem is a non-profit organization established to apply t ...
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RareErth Podcast

Manoj Radhakrishna

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Ever wonder what makes people take the leap and follow their dreams? That's what RareErth Podcast is all about. I sit down with folks who've turned their passions into careers, asking them the tough questions we all face. How'd they find the courage to start? What keeps them going? Whether it's artists, business owners, or creative thinkers, I'm chatting with people who've taken risks to do what they love. If you're looking for a little inspiration or just enjoy a good story, tune in. Learn ...
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Karena menulis dan merekamnya dengan suara adalah cara mengabadikan sebuah kenangan yang telah usai. Support this podcast: https://podcasters.spotify.com/pod/show/heirare/support
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Hello, welcome to A Rare Breed Podcast! My name is Avee (Aw-vee) your host. This show will bring you entertainment and enlightenment. My opinions on topics from politics, social ideology, culture, and more! I try to keep it light, sweet and to the point. I want to give you my juicy take on what is going on in the world and keep the movement of conservative's going strong. The left will not win!
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Medium Rare

Caleb & Josh

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"Medium Rare is a brand-new talk show podcast from the minds behind G33k P0p. Join us every fortnight for discussions of topics that we think are interesting, regardless of if it's what you want to hear"
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The home of Schwarzenegger Watch Together, the podcast that chronologically critiques the career of actor, bodybuilder, politician and American hero Arnold Schwarzenegger, and other projects
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Rare Treasures

Steph Deague-Hall

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Rare Treasures is a podcast all about rare conditions and disabilities. Each episode will focus on a rare disability or condition. We will gather information and statistics as well as interview people affected by the condition.
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Rare Jongens, de podcast

Universiteit van Nederland

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Wie denkt dat klimaatproblemen, feminisme of superrijken typisch dingen van nu zijn, heeft het mis. De Romeinen hadden er ook mee te maken. In de podcast Rare Jongens vertelt historicus Olivier Hekster (Radboud Universiteit) hoe de Romeinen omgingen met dingen waar we ook nu mee te maken hebben. Samen met Merijn Doggen (hoofdredacteur Universiteit van Nederland) bekijkt hij wekelijks onze tijd door de bril van de Romeinen. Met dank aan de Letteren Faculteit van de Radboud Universiteit
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RareWine Podcast - Viden om vin

RareWine Podcast - Viden om vin

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Lær mere om vin og vinens forunderlige verden mens du er på farten - dét er præmissen for denne, ikke helt traditionelle, podcast udgivet af RareWine Group. Vi har kombineret podcastformatet med det bedste fra lydbøger. Således kan du her finde vores yndlingsartikler og portrætter om de største producenter og de mest populære vinområder serveret i en række korte podcast-episoder, som du kan lytte til mens du er på farten. Bliv klogere på selveste Domaine de la Romanée-Conti, lær om hvorfor C ...
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Top women entrepreneurs reveal how they’re running their businesses. From the deals they’ve done to the successes and failures they’ve had. Learn how influential women entrepreneurs are doing business right now, with your host Inspiring Rare Birds Founder Jo Burston. http://www.inspiringrarebirds.com/
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RARE FORMS represents the power to harness nature to manifest our dreams. This podcast features prosperity and abundance prayers and meditations to attract what you desire into your life. Manifest money, wealth, love, romance, health, well-being, abundance and prosperity. RARE FORMS creates motivational digital assets available for purchase at https://www.RAREFORMSNFT.com
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Dr. Raj Parikh from Hartford Hospital discusses the development of the PH-ILD Detection tool, a screening tool designed to help detect pulmonary hypertension (PH) in patients with interstitial lung disease (ILD) at an early stage. Early detection is critical, as there is often a significant delay in diagnosis of PH in ILD patients, leading to worse…
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Director Jay Curtis Miller joins Glen and Psi to talk about two high-T action classics starring Sylvester Stallone and Mel Gibson (The Patriot, Cliffhanger) respectively. We also talk about Miller's latest venture Knuckles which you can help fund https://www.indiegogo.com/projects/knuckles-an-action-proof-of-concept-film#/Follow Jay Curtis Miller o…
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When you’re the parent of a medically complex or disabled child, the experience touches every aspect of our life – including our faith, often in unique and surprising ways. Today, I’m sharing a vulnerable and tender episode, where I interviewed four different women, each coming to the table with their own different spiritual backgrounds, to share h…
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Osteosarcoma is a rare and aggressive bone cancer that usually affects children and teenagers. Over the past 40 years, there’s been little progress to improve survival rates, with the five-year survival rate stagnant at about 60 to 70 percent for localized disease and 15 to 30 percent for metastatic osteosarcoma. OS Therapies is developing an exper…
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Connor Dalby was born with an SCN2A ion channel mutation causing severe epilepsy and eventually leading to hospice care at an early age. It was a chance hallway conversation between Connor’s mom and Dr. Stan Crooke at a conference that sparked the idea for what would become n-Lorem. In a full-circle moment, Connor went on to become the very first p…
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hi, hello, hey—grab your popcorn, because it’s conference time! As many of you know, we’re two best friends with the same rare disease, living our best lives. We truly wouldn’t be friends without Hermansky-Pudlak Syndrome—or without this incredible conference. It’s where our friendship began, and where we reconnect with our amazing community year a…
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Sarah Bishop is busier than most people. She is an ambitious runner, she is a police detective, and she loves the outdoors in New Zealand. But she started having trouble doing even normal things. She would get so tired and out of breath that her basic activity was nerly down to nothing. But nobody could figure out what was wrong with her. Sound fam…
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Part 3 of Rowdy Roddy Piper In today's conversation, we dive deep into the world of professional wrestling and beyond, as we unwrap the life and legacy of one of its most charismatic figures—Roddy Piper. Join your hosts Andrew, Mike, Rob, and Eric as they explore the complexities of Roddy Piper through the lens of Eric’s Pick, the “A&E Biography WW…
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Meghan Weaver interviews Charlie Taylor from Foundation of Strength, discussing their partnership with gyms to provide fitness programs for individuals with autism, Down syndrome, and other different abilities. Charlie shares his journey, from his early interest in weightlifting to his initiation into training individuals with special needs. They t…
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Send us a text Melissa was 17 when she had her first child Evan. Evan was born with a cleft palate and developed 30 other conditions throughout his life. He wasn't expected to live and doctors told her to take him home and let him pass naturally. She was given what she calls a never list (He will never sit up, he will never talk, he will never stan…
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Title: Intro to FSGS Episode Description: In this episode of the Rare Kidney Disease Show, Howard Trachtman, Adjunct Professor of Pediatrics at the University of Michigan, and Chris Gisler, medical director at Travere Therapeutics, explore the complexities of FSGS, covering its pathophysiology, classifications, and clinical presentation. They discu…
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