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Authentic conversations about Tourette Syndrome, produced by an insider who isn't interested in the ol' one-dimensional take on what it's like to have TS. On each episode, host Ben Brown talks with a fellow Touretter about his or her history, tics, social interactions and daily management of Tourette's -- whether by masking it, owning it, medicating it, or something altogether different. It's engaging, funny, heavy, real. Get ready to meet people who blow away the standard portrayal.
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An insight into adulthood with tourette syndrome. What is it? Who lives with it? Can you be successful with it? These plus many more topics will be covered. If you have any questions you want answered or want to be involved please send me an e-mail room17studios@ruffroadmedia.com.au
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It's a moving season finale episode talking with guest Allen Shoaff (a Tourette Association Rising Leader and Youth Ambassador) after highlighting the upcoming Tic Con and a dedication to a Touretter the community recently lost. A subsequent project seeks to build a top-class treatment facility for complex cases of Tourette. Thanks so much to the T…
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Back after Ben's laryngitis outage, it's a new episode, and our guest is Shelby Ally, a model and actor from Orange County, Calif., who manages a tic disorder and insomnia but has found power in self-acceptance and advocacy. Shelby, doing professionally what she loves, emphasizes the pursuit of dreams, with the acknowledgement of challenges. Plus: …
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We're back from our holiday and personal-biz break with a solid conversation Ben recorded recently with guest Sophie. This wasn't their first time talking; Sophie had involved Ben in a project she was working on regarding Tourette portrayals and the media experience. They examine that a bit before covering all sorts of life ground, as tends to happ…
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Talking with professional writer Tara Lerman about a great many things, including the vitality we can find in highlighting Tourette stories and ongoing issues the community faces. Plus: a heap of answers to the question about good/constructive activities for a young person with Tourette. https://www.taralerman.com/ Tara Lerman, 'Why We Need to Chan…
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On this episode, a thoroughly good-vibe conversation with Raven, aka @poecrastinator on the socials. The conversation covers stigma, ticcing openly without disclosure, developing coprolalia and much more. Plus: A parent wants some ideas for activities his son can take up that might help him live with Tourette. https://www.youtube.com/@poecrastinato…
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A very special episode today with guest Bianca Saez and guest host Kass @ticsntatts, two adult women with Tourette sharing raw experiences. Both from Australia, the voices you hear today are well-known in the community -- Kass for her many angles on neurodiversity awareness on social media, and Bianca for her popular YouTube channel and appearances…
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Stephen DiJoseph of Pennsylvania is a lifelong musician whose work connects art and Tourette Syndrome and came to the podcast's attention by way of a short film he made expressing just that -- in a really effective way. It's an art film, but comes off relatable to people with Tourettic brains, and this episode -- exploring Tourette, OCD and so on t…
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We welcome back to the podcast Amanda Talty, president and CEO of the Tourette Association of America. We talk about what TAA has been up to, the upcoming TAA gala (Nov. 10 in NYC), science and research, and more. Don't miss this one! Plus: A question from a parent about a situation at school. Tourette Gala, Nov. 10 in NYC TAA's YouTube Update on w…
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Dan was diagnosed in the 90s, when he was in first grade, forcing him to navigate Tourette when there wasn't much easy access to community. How could he explain it? Did he need to? Could he just get by with masking? Familiar questions-to-self for many with tic disorders like Tourette. Plus: A dad explains Tourette to his 5-year-old. Tourette Gala, …
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Our guest is Erick, a trans man and lifelong Touretter who, in navigating outsider judgments, became his own boss, found success with it, and realized that you "can't waste your energy anymore worrying about the people who try and deny who you are or what you have," as he put it. The discussion covers self-acceptance, co-occuring conditions like OC…
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We talk with the eloquent Tom White, who works in the space of startups, in a great conversation covering pursuit of intellectual curiosities and how to keep momentum through often serious challenges. Plus, listener questions: 1) How do Touretters get used to ticcing in public?; and 2) When is Billie Eilish going to be on the show? Tourette Gala, N…
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We start this week with some breaking news from the Tourette Association of America: a Tourette Syndrome research study from the CDC has just landed, and it concludes that the prevalence numbers for Tourette Syndrome and persistent tic disorders are double what we previously thought. One in 50 school-age children has Tourette or a persistent tic di…
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Peter Zhao -- you might know him as the great Fabulously Tourette -- takes the hosting helm for this episode featuring high school-aged guest Slayton, who has been managing Tourette in his life for about four years so far. Ben kicks us off with some quick Q&A about adults with Tourette before making way for the fantastic conversation that Peter and…
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Let's head to New Zealand, specifically Dunedin, home to a legendary music scene whose latest name, Mads Harrop, is our fantastic guest this week. Mads' experience with Tourette Syndrome, autism and anxiety directly informs and shapes her music, which has a great early-90s quality and lyrics you'll know how to follow. Mads just released a new EP, "…
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Season 8, Episode 2 follows last week's guest-host format with our friend Kass taking the reins in conversation with Lilly. They find quick connections in their respective Tourette experiences. Great discussions here about self evaluation and self care, imposter syndrome and dealing with later-onset tics. https://twitter.com/TicsnTatts https://www.…
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Season 8 is here. Following our usual Episode 0, we're here with Episode 1, in which Ben steps back and Britney and Aiya take the reins. Britney (author Britney Wolf, that is) leads the conversation with Aiya, who was diagnosed last year at age 16. She knows she's always experienced Tourette, but her tics really picked up (she calls it a "tic boom"…
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The Tourette community lost a hero Dec. 15, someone I named on the very first episode (Season 1, Episode 0) of Tourette's Podcast. Steve Bachner was my first frame of reference for TS. Seeing him on an episode of 20/20 in the late 1980s was my first time seeing someone else with the disorder, and there he was, Steve, being followed by John Stossel …
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The Season 7 finale episode. Our guest is Tourette scientist Dr. Flint Espil, who talks with us about the latest Tourette treatments and questions before saying something we weren't expecting. In a great way. Thanks so much to Gogo, Maddie, Johnelle, Tamara, Davide, Dan, Amelie, Winter, Jack, Mark, Sophia, Shamus, Saddiq, Christine, Harper, Flint, …
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Taking risks is ... risky. Might fail, right? You don't just suddenly decide to move from, say, the midwest to Los Angeles to try and turn your talents into a rewarding career. And, lord have mercy, having something like Tourette Syndrome and comorbids like anxiety doesn't help, does it? For pop singer Harper Starling, it did. This is, in fact, her…
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Keeping last week's episode - our analysis with tourette scientist Dr. Christine Conelea on some of the recent talk about young women and their symptoms -- in focus, this week is a referral to a response video from Tics n Tatts on YouTube. Kass, who runs the channel, adds great points. Tons left to explore with this question: has the Tourette scien…
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Recall our episode a while back with the authors of scientific report examining why doctors were seeing reported swells of young women over the course of the pandemic with Tourette-looking symptoms, and how social media like TikTok -- by way of the tic-heavy videos posted by influential Tourette personalities -- might be a player. We're revisiting …
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Saddiq is a radiography student and fitness Instagrammer/TikTok-er whose energy-spending workouts serve a role for his Tourette, discussed here in addition to late diagnosis, coprolalia, creativity and the stress of travel. https://www.instagram.com/saddiqhead/ Support the show https://www.patreon.com/tourettespodcast Tourette's Podcast is made pos…
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A different kind of episode this week -- all listener questions, including some day-of zingers. Should we make this an occasional thing? An all-listener-questions episode? Contact. TAA's YouTube page Ask the Expert: Tourette and COVID-19 Vaccine Support the show https://www.patreon.com/tourettespodcast Tourette's Podcast is made possible by the Tou…
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Seamus Evans, an ambassador for the Tourette Syndrome Association of Australia, is a standup comedian, television and radio personality, and keynote speaker working in his experience with Tourette and the boundaries it seemed to set for him -- which he essentially laughed right past. Not that it was overnight-easy. Not that he didn't have the chall…
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This is a replay of an episode from 2019 that speaks pretty well to the emails we get asking for discussion of alternative "remedies" -- and why the podcast doesn't (or does so with heavy heaps of caution). Here's the writeup that accompanied the original airing: For Episode 10 of Season 3, we've called a doctor. (Yes, one with TS.) Clay Jones, M.D…
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Tourette. Rhetoric. Tourrhetoric. We're talking on this episode with Sophia Maier, a Touretter who takes extra care and study when it comes to the shapes and tones and incisions we create with our words. This isn't just a "words matter" dialogue -- it's about really caring for the language people use and why, so loaded with implications for empathy…
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Astrophysicist Mark Giovinazzi is on the show -- a guest we're meeting almost at random. Mark, an exoplanet-hunter, sees the chaos of Tourette and the universe working nicely together. Plus: that vocal-tic feeling; and Ben has an wonderful panic attack at work. https://exoplanets.nasa.gov/ Tourette's Podcast is made possible by the Tourette Associa…
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Fourteen-year-old Jack Kearney, an active Touretter whose name you might've heard around the community, brings an important point -- when it comes to community, don't forget yourself. When Tourette became a focus at his school, with visiting ambassadors spreading peer education, Jack made sure to share his own story, style and perspective -- a soli…
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What an episode. Winter Tashlin is a name you might know from the Twittersphere and acceptance messaging. But hearing him speak is something else. From his accent, you’ll quite understandably assume he’s British. Many of his fellow Americans do. This -- along with his creativity, queerness, self-acceptance and other central elements -- all interact…
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Getting it done in a rural area with little to no support for Tourette Syndrome is just one of the vitals we hit with our guest this week, Amelie, a 15-year-old who lives in a small village in Ireland and depends on herself to not only live with her TS but educate peers as well -- something she's done a solid job with. Great takes from a seriously …
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Dan Zerin is here! The Iceland-based comedian and podcast host welcomes room for lighter-side talk about Tourette et al. He in fact was part of an award-winning comedy stage show about Tourette Syndrome, "My Voices Have Tourettes," which ran weekly to sold out rooms -- for years. Since the pandemic hit, it's been a podcast you'll want to bookmark i…
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Bonus episode! If you're new to Tourette Syndrome, it's fair if you haven't heard the name Oliver Sacks before. But he's one of the most acclaimed figures in all of neuroscience -- arguably in all of medicine, and his humanization of disorders including Tourette had incalculable benefit. In May, Ben got to interview people closely involved with Sac…
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Let's crack into a mystery. Scientists began to notice it as the pandemic revised our lives -- young people, almost all of them women, started showing up to the doctor in surprising numbers with what looked like Tourette Syndrome. Out of nowhere. No such prior symptoms. The common denominator? They'd all been watching Tourette content on the social…
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What better way to celebrate Tourette Awareness Month (May 15-June 15) than to open up about having the disorder? For the first time, ever, we mean (to whom it applies). Just a few days before this episode's conversation took place, our guest, 26-year-old Jhonelle, spoke up for the first time publicly about her life with Tourette Syndrome. To class…
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This is a milestone of sorts; we're talking with the first guest Tourette's Podcast ever had -- Maddie -- to hear how life has been since she opened it up to the world on Season 1, Episode 1. This is one of those roaming, casual-paced conversations that covers so much -- from self-evaluation to relationships to Elon Musk and cyborgs to transition p…
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Episode 1 of Season 7, "Whispering For Too Long," is one of the best conversations Tourette's Podcast has ever recorded. Our guest is Gogo. She's lived with TS her entire life, but didn't know it as such until much later in adulthood -- and that's a big factor for her. When she finally got the diagnosis, it was like the world turned different color…
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Popping with Tourette Awareness Month (May 15-June 15), here's your entry to lucky number Season 7 of Tourette's Podcast with, as always, a twofer. Episodes 0 and 1 are out simultaneously. Episode 0 of Season 7, "Launch," captures a super solid conversation between podcast host Ben and two giants in the Tourette advocacy world -- TV presenter and w…
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Folks! Season 7 is here, and just ahead of Tourette Awareness Month (May 15-June 15), kicked off PROPERLY by 2021 Virtual Conference with the Tourette Association of America. Here we catch up with Meghan Burns from TAA to talk about why this one is so significant. And just drops some cool breaking news on us. Listen! Check in! Lots coming up and we…
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In this episode I explain my absence from producing more episodes and where I want to take the show.If you would like some questions answered please e-mail connect@ruffroadmedia.com.au or if you would like to be a guest on the show!! --- Send in a voice message: https://podcasters.spotify.com/pod/show/ticcingwithtourettes/message…
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On the finale episode of Season 6, we close out an important ticket with a parent who wanted to know how to tell his young son he'd been diagnosed with Tourette Syndrome; we start up a book list; we urge your participation in National Advocacy Day (for U.S. residents); and then we get to the perfect guest to close out the season, Calvin Ramirez. Th…
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On this (great) episode, we have Eli, who works in American politics and campaigning. Lots of "yeah, me too!" talk about anxiety and fear and how it influences our behavior and, often, inaction, even on things we'd love to do. Also: a question -- with lots of answers -- from a parent on how to tell his young son he's been diagnosed with Tourette Sy…
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Things that Ben and this week's guest, Becky of London, have in common: Both were young rebels. Both had a frustrating school experience. Both are creativity-driven. Both totally immerse themselves in specific interests in short blasts before moving onto the next total immersion. Both are learning how to slow down and take breaks. Becky is a barber…
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By request, this is the audio of Ben's remarks at the 2021 Virtual Teen Summit, which the Tourette Association of America held Jan. 9, 2021. With full remarks and some Q&A with the many teenagers on hand, the focus here is on self-acceptance and the power ingredient of vulnerability. Tourette's Podcast is made possible by the Tourette Association o…
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She freestyles her life experience. She holds rhythm. She's a self-taught musician. She owns her Tourette. She's 8 years old. Ky'lee Da Kid has so much in her command, but she lives in an area lacking on Tourette awareness, and so her coprolalia and other aspects don't get proper regard. But her mom, Sparkle, has something to say about it. She's th…
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It hasn't been easy for Shikhar, an 18-year-old from India. New to N. America, he's been constantly bullied for his tics in school. "It's not easy for me to tell anybody that I have Tourette's," Shikhar says. To make it worse, the racism he experiences adds all the more painful weight. But he's pushing through to the clearing. He's found the Touret…
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Self-isolation. Social tension. Fighting sleep because we want to be productive. Being resistant to our own nature. Sounds like heavy stuff, and it is, but why is this episode such a pleasure? Our guest, a 54-year-old woman with Tourette and all the things that come with it, lays it out in such an accessible, nod-your-head way. We get into the comp…
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Hey, parents -- freaking out about your young child's future? Is his or her Tourette diagnosis all you can think about? Understandable, but give yourself a break and listen to TS parent Christina (who also happens to be a school teacher) describe what she found as her son got into his teen years and became someone she didn't have to worry about so …
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Disclosing Tourette for the first time in one's adult life is an experience. You ask yourself a lot of questions, maybe look over your shoulder a bit. But the revelations coming flying. Your host certainly knows. And now so does Ben Gardner, who contacted Tourette's Podcast just before he told the world for the first time that he had Tourette Syndr…
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