Last summer, something monumental happened. One of Uncuffed's founding producers, Greg Eskridge, came home after more than 30 years in prison. In this episode we’ll bring you back to that emotional day last summer when he walked out of the San Quentin gates, free at last. Our work in prisons is supported by the California Arts Council, the California Department of Corrections and Rehabilitation, independent foundations, and donations from listeners like you. Learn more, sign up for Uncuffed news, and support the program at www.weareuncuffed.org Follow us @WeAreUncuffed on Instagram and Facebook Transcripts are available within a week of the episode coming out at www.kalw.org/podcast/uncuffed…
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Team Vasculitis: Thriving through Life with Chronic Illness
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Content provided by Felicia Distad. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Felicia Distad or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ro.player.fm/legal.
Life with any chronic illness is a lonely struggle. I don’t have to tell you that. That’s why I’m here. I want you to know that you are NOT alone. I want you to feel seen, heard, and supported. Here, we’re in it together. Here, you have someone who understands. Here, I remind you that you are part of a Team… and by supporting one another and collaborating together, we can do more than survive. We can thrive.
…
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227 episoade
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Content provided by Felicia Distad. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Felicia Distad or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ro.player.fm/legal.
Life with any chronic illness is a lonely struggle. I don’t have to tell you that. That’s why I’m here. I want you to know that you are NOT alone. I want you to feel seen, heard, and supported. Here, we’re in it together. Here, you have someone who understands. Here, I remind you that you are part of a Team… and by supporting one another and collaborating together, we can do more than survive. We can thrive.
…
continue reading
227 episoade
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1 Ep 226 - Save Your Emotional Energy for the People Who Matter 18:30
18:30 
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Redare mai Târziu Redare mai Târziu Liste Like PlăcutAre you EXHAUSTED because you're constantly trying to explain yourself... all the time... to everyone? When you have to say no, when you have to reschedule, when you have to limit yourself, when you're not feeling well... and on and on to forever. Today I talk about how to handle this and how to make sure this emotional exhaustion doesn't hurt your closest relationships. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…
1 Ep 225 - Gift Ideas for People with Chronic Illnesses 16:31
16:31 Redare mai Târziu Redare mai Târziu Liste Like Plăcut16:31
Redare mai Târziu Redare mai Târziu Liste Like PlăcutIt's the most wonderful time of the year... which means all kinds of gift giving is going on. Today I talk about 12 different gifts most people with a chronic illness would absolutely love! I also talk about what NOT to gift and why! Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…
1 Ep 224 - Let's Talk about Azathioprine (Imuran) 20:34
20:34 Redare mai Târziu Redare mai Târziu Liste Like Plăcut20:34
Redare mai Târziu Redare mai Târziu Liste Like PlăcutAzathioprine is a common medication for people with chronic illnesses. Over 800,000 people are prescibed it in the US alone. Today I dig into details, what you need to know, and share my own experience as well as several other people's experiences. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…
1 Ep 223 - How to Survive the Holiday Season with a Chronic Illness 11:07
11:07 Redare mai Târziu Redare mai Târziu Liste Like Plăcut11:07
Redare mai Târziu Redare mai Târziu Liste Like PlăcutIt's the most stressful time of the year! So today I talk about five ways to make sure you not only survive the holiday season, but you can still thrive through it. You deserve to experience a holiday season that lights you up, brings you joy and gives you memories of love and laughter not stress, anxiety, pain and exhaustion. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…
Ever wish your loved ones knew how to show up for you and support you? Well, this is the one for you to send to your loved ones! Today I offer 5 ways that our healthy loved ones can work to show up for us with actionable tips - as well as a few ways that they probably think they're being supportive when it really comes across as telling you you're not doing enough or downplaying what you're going through! So click that share button and send this to anyone who needs to hear it! Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…
1 Ep 221 - [Part 7] Raising Kids as a Mom with Granulomatosis with Polyangiitis (formerly Wegener's Vasculitis) 15:35
15:35 Redare mai Târziu Redare mai Târziu Liste Like Plăcut15:35
Redare mai Târziu Redare mai Târziu Liste Like PlăcutRaising kids when you have a potentially fatal auto immune disease is a head trip. It’s an extra kind of difficult emotionally that you can’t imagine until you’re not living it. Today I talk about that journey mentally and emotionally... as well as ways my husband and I intentionally are creating healthy habits that support our daughter's bodies to try and lower the chance that they might develop an autoimmune condition. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…
1 Ep 220 - [Part 6] Postpartum with Granulomatosis with Polyangiitis (formerly Wegener's Vasculitis) 19:30
19:30 Redare mai Târziu Redare mai Târziu Liste Like Plăcut19:30
Redare mai Târziu Redare mai Târziu Liste Like PlăcutWhat happens to a woman's body after she delivers a baby is... a LOT of things. If you have an auto immune condition - or a rare disease - it becomes much more complicated. Today I share my journey postpartum with both of my babies. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…
1 Ep 219 - [Part 5] My Pregnancies with Granulomatosis with Polyangiitis (formerly Wegener's Vasculitis) 20:44
20:44 Redare mai Târziu Redare mai Târziu Liste Like Plăcut20:44
Redare mai Târziu Redare mai Târziu Liste Like PlăcutIt's not all doom and gloom. It's not all horror stories. Today I share my journey with both of my pregnancies and some of the challenges I faced as well as the victories throughout the process. I also tell you what I whole heartedly believe was the key thing I did to increase my fertility and get pregnant - even with low egg count and other challenges. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…
1 Ep 218 - [Part 4] The Challenges of Getting Pregnant with Granulomatosis with Polyangiitis (formerly Wegener's Vasculitis) 23:56
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Redare mai Târziu Redare mai Târziu Liste Like PlăcutIf you're hoping to or planning getting sick and you or your spouse have Granulomatosis with Polyangiitis... this episode is for you. I dive into challenges you need to be aware of as well as my own personal struggles. I share medication insight, what you'll need to advocate on... and what you need to ignore that the scary clinical medical field will present you with! Here's the study I mention about Pregnancy and Vasculitis: https://pubmed.ncbi.nlm.nih.gov/36192559/ Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…
1 Ep 217 - [Part 3] Azathioprine Treatment with Granulomatosis with Polyangiitis (formerly Wegener's Vasculitis) 20:39
20:39 Redare mai Târziu Redare mai Târziu Liste Like Plăcut20:39
Redare mai Târziu Redare mai Târziu Liste Like PlăcutWhen the "best" treatment that works for the "vast majority" of people with your disease... doesn't work for you. What's next? In today's episode I talk about the treatment that did work, some really tough discussions my husband and I had to have, and the devestation when you start to have a flare even though you're doing EVERYTHING right. Links mentioned in the episode: https://pubmed.ncbi.nlm.nih.gov/19129430/ https://www.drugs.com/sfx/azathioprine-side-effects.html https://us.fertility.com/fertility-facts/fertility-preservation/egg-embryo-freezing Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…
1 Ep 216 - [Part 2] Rituximab Treatment Journey with Granulomatosis with Polyangiitis (Wegener's Vasculitis) 17:09
17:09 Redare mai Târziu Redare mai Târziu Liste Like Plăcut17:09
Redare mai Târziu Redare mai Târziu Liste Like PlăcutIf you've been diagnosed with any form of ANCA Vasculitis someone has probably talked to you about Rituximab/Rituxin. Today I talk about my process in the first year of being sick and getting three rounds of Rituximab as well as the consequences of being on high doses of prednisone. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…
1 Ep 215 - [Part 1] Onset and Diagnosis of ANCA Vasculitis - Granulomatosis with Polyangiitis (formerly Wegener's) 14:09
14:09 Redare mai Târziu Redare mai Târziu Liste Like Plăcut14:09
Redare mai Târziu Redare mai Târziu Liste Like PlăcutWhen you start having symptoms - but no one puts the pieces together things can go from bad to deadly FAST. That's what happened to me. This is part one of onset and diagnosis of my journey with a potentially fatal rare disease. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…
Dealing with a chronic illness is incredibly difficult on your body. The stress, the unknowns, the changes, the fear, the pain… it all takes a toll on your nervous system. Which then takes an EXTRA toll on your overall well-being and often results in a dysregulated nervous system. The reason this is a problem is that this extra stress can worsen your symptoms, it can lessen the effectiveness of your medication, it can cause new health challenges and more. If you have a dysregulated nervous system, you are less prepared to manage any new things which is a big problem with chronic illness because you are always dealing with new and challenging aspects to your life. This episode goes into 5 Ways to Regulate Your Nervous System in the Moment as well as advice on digging deeper to work through your fight or flight response and truly be in balance. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…
1 Ep 213 - The Habits I've Built to Support, Heal and Strengthen my Chronically Ill Body 29:27
29:27 Redare mai Târziu Redare mai Târziu Liste Like Plăcut29:27
Redare mai Târziu Redare mai Târziu Liste Like PlăcutHave you ever made a list of the healthy habits you have built to support your body and to thrive? I recently did this and found myself so proud of how far I have come. Today I talk to you about my process and go into 20+ habits I have built to change my life. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…
1 Ep 212 - The Mental Toll of Isolation with Chronic Illness 14:57
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Redare mai Târziu Redare mai Târziu Liste Like PlăcutIt doesn’t get talked about enough, the isolation. The way everyone drifts away. The way you don’t have the energy to show up and participate. So even though you’re lonely and wish you could be with people, you also need to be left alone. Today we talk about this isolation, the toll it takes on your mental health and four ways to manage it! Be sure and check out Holly! Instagram: https://www.instagram.com/holly.bertone/ Podcast: https://academy.pinkfortitude.com/blog Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…
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