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Miller-Dieker syndrome and celebrating the life of Lily, with Priyanka Saha
Manage episode 404522835 series 3555830
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When Priyanka Saha attended her final pregnancy scan, she was told that her baby wouldn’t live very long. Lily was diagnosed with Miller Dieker Syndrome - a rare disorder that causes the outer part of a child's brain (the cerebral cortex) to be smooth causing severe developmental issues. Despite the heart-wrenching prognosis and knowing that Lily only had a limited time on earth, Priyanka and her husband made it their mission to make every day special.
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https://www.instagram.com/the_lilyflower/
https://www.instagram.com/veryspecialkids/?hl=en
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