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SSIEM 2022 special episode
Manage episode 377032209 series 3001064
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Professor Ute Spiekerkoetter co-hosts a special episode of the podcast, compiled to accompany the SSIEM 2022 themed issue from September 2023 and look back on a wonderful meeting hosted in Freiburg the year before. This episode features three different papers and you jump straight to these at the following locations: 6 min 25 sec: Dr Carla Hollak, Noa Rosenburg and Nina Stolwijk discuss public-private partnerships in drug development 27 min 10 sec: Professor Martina Huemer explains how we should all be using patient reported outcome measures in our work 37 min 16 sec: Kiera Batten explains the role of exercise and exercise prescription in inherited metabolic disease Development of medicines for rare diseases and inborn errors of metabolism: Toward novel public–private partnerships Noa Rosenberg, et al https://doi.org/10.1002/jimd.12605 Measuring what matters: Why and how to include patient reported outcomes in clinical care and research on inborn errors of metabolism Martina Huemer, et al https://doi.org/10.1002/jimd.12622 Exercise testing and prescription in patients with inborn errors of muscle energy metabolism Kiera Batten, et al https://doi.org/10.1002/jimd.12644
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