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A White Christmas for Annabelle

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Manage episode 461237149 series 2907426
Content provided by BBC and BBC Radio 4. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by BBC and BBC Radio 4 or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ro.player.fm/legal.

For Lisa Hover and her husband Andy, life on the Hampshire Dorset border with their family of four children seemed idyllic. Even when a routine sight test on their daughter Annabelle as she started Primary school picked up an abnormality it all seemed manageable. But the abnormality turned out to be macular degeneration and early sight loss, which itself masked a more severe and life shortening genetic condition. The diagnosis of Batten disease changed everything. And yet, with no cure available, and physical and mental decline forecast, Annabelle lead the family in demanding everything from her limited life span. That included setting up a charity, Batten fighters forever or BFF ( battenfightersforever.com ), continuing her Girl Guiding and going skiing. Lisa talks to Sian about the challenges, the joys and the sadness - and particularly about Annabelle's desire to have a White Christmas will all the family.

Producer; Tom Alban

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67 episoade

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A White Christmas for Annabelle

Life Changing

367 subscribers

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Manage episode 461237149 series 2907426
Content provided by BBC and BBC Radio 4. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by BBC and BBC Radio 4 or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ro.player.fm/legal.

For Lisa Hover and her husband Andy, life on the Hampshire Dorset border with their family of four children seemed idyllic. Even when a routine sight test on their daughter Annabelle as she started Primary school picked up an abnormality it all seemed manageable. But the abnormality turned out to be macular degeneration and early sight loss, which itself masked a more severe and life shortening genetic condition. The diagnosis of Batten disease changed everything. And yet, with no cure available, and physical and mental decline forecast, Annabelle lead the family in demanding everything from her limited life span. That included setting up a charity, Batten fighters forever or BFF ( battenfightersforever.com ), continuing her Girl Guiding and going skiing. Lisa talks to Sian about the challenges, the joys and the sadness - and particularly about Annabelle's desire to have a White Christmas will all the family.

Producer; Tom Alban

  continue reading

67 episoade

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