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My Journey as a Special Needs Mum: Hawaiki's Fight Through Comas and Misdiagnosis

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Manage episode 408592342 series 3552326
Content provided by Jess Ngaheu. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Jess Ngaheu or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ro.player.fm/legal.

Have you ever wondered what it's like to parent a child with special needs? The unexpected challenges, the heartbreak of medical struggles, the relentless fight for their wellbeing?
Join me for a deeply emotional journey as I share the harrowing story of my son Hawaiki's first few months of life. His difficult birth and extended NICU stay were just the beginning. Misdiagnosis, medical complications, and two terrifying comas – this is our fight for Hawaiki's life and a heartbreaking look at how the hospital system sometimes fails our most vulnerable. Yet, through it all, we find the strength to keep believing.
Key Takeaways:

  • The emotional rollercoaster of parenting a child with complex medical needs.
  • The importance of advocating tirelessly for your child, even when it's difficult.
  • The challenges of navigating complex medical systems.
  • Finding strength and love amidst immense hardship.

Chapters:
0:00:00 - 10:02:00 - Introduction to the Podcast and Episode Theme
10:02:00 - 0:07:00 - The Birth of Hawaii and the Beginning of His Health Struggles
0:12:00 - 0:15:00 - The Emotional Toll of Preparing for Emergencies and Hospital Life
0:15:00 - 0:20:00 - Christmas Day Crisis: Rushing to the Hospital and Facing the 0:20:00 - 0:28:00 - The Second Coma Induction and Transfer to a Specialised Children's 0:28:00 - 0:36:00 - Interactions with Healthcare Professionals and the Challenges Faced
0:36:00 - 0:44:00 - The Difficulties of Managing a Misdiagnosis and Hospital System Flaws
0:44:00 - 0:50:00 - The Ongoing Medical Battle and Advocating for Hawaii
Quotes:

  • A mother's love knows no bounds, especially when her child is fighting for their life.
  • When the hospital system fails you, a mother's voice becomes the loudest.
  • Misdiagnosis can have devastating consequences. Always question, always advocate.
  • Sometimes the biggest battles are fought within hospital walls.

New Therapy Slots Available: Due to popular demand, we opened up an extra day at her practice in Oxenford, offering revolutionary therapies for neurodivergent children. Limited spots available—click this link to inquire https://www.halaxy.com/book/little-superheroes/location/1140031

Consultation & Training Services: We also offer consultation and training services to childcare centres and schools with special needs departments. If you know anyone who could benefit, please contact us 0410 053 611 / admin@littlesuperheroes.com.au
Connect with us:
- www.littlesuperheroes.com.au
- Instagram: https://www.instagram.com/littlesuperheroes_/
- Facebook: https://www.facebook.com/profile.php?id=100085361951225

Interested in being a podcast guest? Fill out the form https://forms.gle/zNbMezugBZxAJxBa6
For inquiries, guesting opportunities, or collaborations, reach out to us at admin@littlesuperheroes.com.au

  continue reading

28 episoade

Artwork
iconDistribuie
 
Manage episode 408592342 series 3552326
Content provided by Jess Ngaheu. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Jess Ngaheu or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ro.player.fm/legal.

Have you ever wondered what it's like to parent a child with special needs? The unexpected challenges, the heartbreak of medical struggles, the relentless fight for their wellbeing?
Join me for a deeply emotional journey as I share the harrowing story of my son Hawaiki's first few months of life. His difficult birth and extended NICU stay were just the beginning. Misdiagnosis, medical complications, and two terrifying comas – this is our fight for Hawaiki's life and a heartbreaking look at how the hospital system sometimes fails our most vulnerable. Yet, through it all, we find the strength to keep believing.
Key Takeaways:

  • The emotional rollercoaster of parenting a child with complex medical needs.
  • The importance of advocating tirelessly for your child, even when it's difficult.
  • The challenges of navigating complex medical systems.
  • Finding strength and love amidst immense hardship.

Chapters:
0:00:00 - 10:02:00 - Introduction to the Podcast and Episode Theme
10:02:00 - 0:07:00 - The Birth of Hawaii and the Beginning of His Health Struggles
0:12:00 - 0:15:00 - The Emotional Toll of Preparing for Emergencies and Hospital Life
0:15:00 - 0:20:00 - Christmas Day Crisis: Rushing to the Hospital and Facing the 0:20:00 - 0:28:00 - The Second Coma Induction and Transfer to a Specialised Children's 0:28:00 - 0:36:00 - Interactions with Healthcare Professionals and the Challenges Faced
0:36:00 - 0:44:00 - The Difficulties of Managing a Misdiagnosis and Hospital System Flaws
0:44:00 - 0:50:00 - The Ongoing Medical Battle and Advocating for Hawaii
Quotes:

  • A mother's love knows no bounds, especially when her child is fighting for their life.
  • When the hospital system fails you, a mother's voice becomes the loudest.
  • Misdiagnosis can have devastating consequences. Always question, always advocate.
  • Sometimes the biggest battles are fought within hospital walls.

New Therapy Slots Available: Due to popular demand, we opened up an extra day at her practice in Oxenford, offering revolutionary therapies for neurodivergent children. Limited spots available—click this link to inquire https://www.halaxy.com/book/little-superheroes/location/1140031

Consultation & Training Services: We also offer consultation and training services to childcare centres and schools with special needs departments. If you know anyone who could benefit, please contact us 0410 053 611 / admin@littlesuperheroes.com.au
Connect with us:
- www.littlesuperheroes.com.au
- Instagram: https://www.instagram.com/littlesuperheroes_/
- Facebook: https://www.facebook.com/profile.php?id=100085361951225

Interested in being a podcast guest? Fill out the form https://forms.gle/zNbMezugBZxAJxBa6
For inquiries, guesting opportunities, or collaborations, reach out to us at admin@littlesuperheroes.com.au

  continue reading

28 episoade

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