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#21 - Patti Demuri, Rare Disease Patient Advocate
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In this episode our guest is Patti Demuri, a Rare Disease Patient Advocate & Educator.
We’ll be discussing:
- Demuri's background and her path to becoming a Rare Disease Patient Advocate
- What makes rare disease patients unique in how they interact with healthcare & clinicians.
- The concept of medical trauma
- How Telehealth can benefit rare disease patients
Links to Check Out:
LinkedIn: https://www.linkedin.com/in/pattidemuri/
Links to Check Out for Sam:
Website: https://www.telehealtheasy.com
Twitter https://twitter.com/samiamlip
LinkedIn: https://www.linkedin.com/in/samlippolis
Clubhouse: https://www.joinclubhouse.com/@samiamlip
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