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Navigating the Uncomfortable: Honest Conversations About Disability and Identity with Terri

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Content provided by Brooke Millhouse. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Brooke Millhouse or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ro.player.fm/legal.

Brooke sits down with Terri, a passionate advocate for disability representation and the founder of a charity focused on supporting individuals with multiple sclerosis (MS). Terri shares her journey of navigating life with an invisible disability, discussing the challenges of obtaining a diagnosis and the misconceptions surrounding disabilities.

The conversation highlights the importance of community, representation, and the power of embracing one's disability as a catalyst for personal growth and change.

KEY TAKEAWAYS

  • Embracing disability can lead to personal growth and new opportunities, such as becoming an author or starting a consultancy, which may not have been pursued otherwise.
  • There is a significant lack of diverse representation in the disability community, particularly for people of colour. Creating visibility for different experiences is crucial for fostering inclusivity.
  • The journey to diagnosis can be fraught with challenges, including medical misogyny and delays in receiving information. Personal experiences highlight the need for better communication and understanding within the healthcare system.
  • Establishing a charity that connects individuals with similar disabilities fosters a sense of belonging and reduces feelings of isolation. Events and experiences can help individuals engage socially and feel supported.
  • Developing patience is essential when dealing with medical professionals and navigating the complexities of disability. Embracing one's journey and focusing on helping others can provide purpose and strength.

BEST MOMENTS

"I feel like it's almost pushed me to do things that I might not have done if I was quote unquote well."

"I didn't want to stay in a space where I was unhappy and it was causing me more stress."

"I feel like people also forget that I have the same diagnosis that the charity is based around."

"You can't choose how people feel towards a situation."

VALUABLE RESOURCES

https://podcasts.apple.com/gb/podcast/disabled-and-proud/id1621152878

HOST BIO

Disabled and Proud is the show that brings listeners a different perspective on disability. Each week this podcast highlights an awesome disabled guest speaking about their own disability; why they are proud to be disabled and why they are proud to be themselves.

The conversations in this show will look at what challenges these amazing people face socially, mentally, physically and life in general. This show is raw, open, honest, funny, welcoming and educational.

Disabled & Proud does exactly what it says on the tin! And whilst we are creating this space for disabled people to be unashamedly themselves, without the need to conform to society, this is also not about toxic positivity. This show will be shining a big, bright light on disability without it being “Paralympic or pity”.

As you will hear disability is WHOLE, COMPLETE & PERFECT and whilst the topic of disability can be quite heavy - and we definitely don't shy away from the bad days - this podcast is also about having fun too! Our aim is to play a part in reclaiming the word disability - turning it from inadequacy to perfection!

INSTAGRAM! https://www.instagram.com/disabledandproudpodcast/?hl=en: https://www.instagram.com/disabledandproudpodcast/?hl=en

  continue reading

100 episoade

Artwork
iconDistribuie
 
Manage episode 440477459 series 3557950
Content provided by Brooke Millhouse. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Brooke Millhouse or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ro.player.fm/legal.

Brooke sits down with Terri, a passionate advocate for disability representation and the founder of a charity focused on supporting individuals with multiple sclerosis (MS). Terri shares her journey of navigating life with an invisible disability, discussing the challenges of obtaining a diagnosis and the misconceptions surrounding disabilities.

The conversation highlights the importance of community, representation, and the power of embracing one's disability as a catalyst for personal growth and change.

KEY TAKEAWAYS

  • Embracing disability can lead to personal growth and new opportunities, such as becoming an author or starting a consultancy, which may not have been pursued otherwise.
  • There is a significant lack of diverse representation in the disability community, particularly for people of colour. Creating visibility for different experiences is crucial for fostering inclusivity.
  • The journey to diagnosis can be fraught with challenges, including medical misogyny and delays in receiving information. Personal experiences highlight the need for better communication and understanding within the healthcare system.
  • Establishing a charity that connects individuals with similar disabilities fosters a sense of belonging and reduces feelings of isolation. Events and experiences can help individuals engage socially and feel supported.
  • Developing patience is essential when dealing with medical professionals and navigating the complexities of disability. Embracing one's journey and focusing on helping others can provide purpose and strength.

BEST MOMENTS

"I feel like it's almost pushed me to do things that I might not have done if I was quote unquote well."

"I didn't want to stay in a space where I was unhappy and it was causing me more stress."

"I feel like people also forget that I have the same diagnosis that the charity is based around."

"You can't choose how people feel towards a situation."

VALUABLE RESOURCES

https://podcasts.apple.com/gb/podcast/disabled-and-proud/id1621152878

HOST BIO

Disabled and Proud is the show that brings listeners a different perspective on disability. Each week this podcast highlights an awesome disabled guest speaking about their own disability; why they are proud to be disabled and why they are proud to be themselves.

The conversations in this show will look at what challenges these amazing people face socially, mentally, physically and life in general. This show is raw, open, honest, funny, welcoming and educational.

Disabled & Proud does exactly what it says on the tin! And whilst we are creating this space for disabled people to be unashamedly themselves, without the need to conform to society, this is also not about toxic positivity. This show will be shining a big, bright light on disability without it being “Paralympic or pity”.

As you will hear disability is WHOLE, COMPLETE & PERFECT and whilst the topic of disability can be quite heavy - and we definitely don't shy away from the bad days - this podcast is also about having fun too! Our aim is to play a part in reclaiming the word disability - turning it from inadequacy to perfection!

INSTAGRAM! https://www.instagram.com/disabledandproudpodcast/?hl=en: https://www.instagram.com/disabledandproudpodcast/?hl=en

  continue reading

100 episoade

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Brooke welcomes Aaron Fowler, a visually impaired rugby player and physio, for an engaging conversation about his journey in the world of VI rugby. Aaron shares his experiences with retinitis pigmentosa, discussing the challenges of growing up with sight loss and the importance of community support. The episode delves into the unique adaptations of visually impaired rugby, including the use of an audible ball and modified rules, as well as the camaraderie and inclusivity within the sport. KEY TAKEAWAYS VI rugby, or visually impaired rugby, is played with adaptations such as a ball that makes noise and a touch-based tackling system. The game is played seven-a-side, with two halves of 10 minutes each, and includes a classification system for players based on their level of visual impairment. Aaron was diagnosed with retinitis pigmentosa at the age of five. His journey included learning to use a white cane at 17 and later getting a guide dog, which significantly impacted his independence and mobility. The rugby community is described as inclusive and supportive, with Aaron emphasising the importance of camaraderie among players. He also highlighted the need for better education and awareness about disabilities in society. Participation in visually impaired sports often requires significant travel and personal funding, as there is limited financial support available. Teams often rely on fundraising efforts to cover travel costs for competitions. VI rugby is expanding internationally, with teams in several countries including England, Japan, and Ireland. Upcoming tournaments, such as the one in November, aim to showcase the sport and attract more players and spectators, with hopes of increasing participation, especially among women. BEST MOMENTS "I think when you have a disability, you either go one of two ways. Either you get really frustrated and bitter about things, or you just kind of have to accept that this is how the world currently is." "I was about 12 when my parents told me the extent to which my sight loss could develop into one day. It was a lot to process." "I think there's still a lot to be done to educate society about people with various disabilities." "This will be the first time we've had an international tournament in England, and it will be a great opportunity for us to showcase our sport." VALUABLE RESOURCES https://podcasts.apple.com/gb/podcast/disabled-and-proud/id1621152878 HOST BIO Disabled and Proud is the show that brings listeners a different perspective on disability. Each week this podcast highlights an awesome disabled guest speaking about their own disability; why they are proud to be disabled and why they are proud to be themselves. The conversations in this show will look at what challenges these amazing people face socially, mentally, physically and life in general. This show is raw, open, honest, funny, welcoming and educational. Disabled & Proud does exactly what it says on the tin! And whilst we are creating this space for disabled people to be unashamedly themselves, without the need to conform to society, this is also not about toxic positivity. This show will be shining a big, bright light on disability without it being “Paralympic or pity”. As you will hear disability is WHOLE, COMPLETE & PERFECT and whilst the topic of disability can be quite heavy - and we definitely don't shy away from the bad days - this podcast is also about having fun too! Our aim is to play a part in reclaiming the word disability - turning it from inadequacy to perfection! INSTAGRAM! https://www.instagram.com/disabledandproudpodcast/?hl=en: https://www.instagram.com/disabledandproudpodcast/?hl=en…
 
Brooke reconnects with former guest, Jess for a heartfelt conversation about the evolving landscape of disability pride in the UK and the US. Jess shares her personal journey of moving from London to Chicago, navigating a divorce, and re-entering the dating scene as a disabled woman. The duo explores the stark differences in societal attitudes towards disability in both countries, touching on the impact of media representation and accessibility. They delve into the challenges of dating, particularly the unique experiences faced by disabled individuals, and emphasise the importance of self-love and setting boundaries. KEY TAKEAWAYS There is a notable difference in how disability is perceived and represented in the UK versus the US. While the US has made strides in accessibility through legislation like the ADA, the general attitude towards disability often leans towards a "fix it" mindset, whereas the UK tends to have a more accepting and integrated view of disability in everyday life. Personal life changes, such as going through a divorce, can significantly alter one's perspective on disability and self-identity. The journey of navigating dating and relationships post-divorce has led to a deeper understanding of self-worth and the importance of setting boundaries. The experience of dating apps varies greatly between the US and the UK. Being upfront about disabilities can serve as a filter, helping to attract more understanding partners. The high prices of medications in the US, compared to the more accessible NHS in the UK, create significant barriers for disabled individuals, often forcing them to ration their medications. Taking up space and claiming one's identity as a disabled person is crucial for self-empowerment. BEST MOMENTS "Disability Pride really began in the U.S. ... but it's not. Disability is very much seen in the U.S. as something that still needs to be overcome." "It's okay to take up space. ... You should take it up as loudly and as proudly as possible." "The dating scene is hell right now. Let's not mince words because it is." VALUABLE RESOURCES https://podcasts.apple.com/gb/podcast/disabled-and-proud/id1621152878 HOST BIO Disabled and Proud is the show that brings listeners a different perspective on disability. Each week this podcast highlights an awesome disabled guest speaking about their own disability; why they are proud to be disabled and why they are proud to be themselves. The conversations in this show will look at what challenges these amazing people face socially, mentally, physically and life in general. This show is raw, open, honest, funny, welcoming and educational. Disabled & Proud does exactly what it says on the tin! And whilst we are creating this space for disabled people to be unashamedly themselves, without the need to conform to society, this is also not about toxic positivity. This show will be shining a big, bright light on disability without it being “Paralympic or pity”. As you will hear disability is WHOLE, COMPLETE & PERFECT and whilst the topic of disability can be quite heavy - and we definitely don't shy away from the bad days - this podcast is also about having fun too! Our aim is to play a part in reclaiming the word disability - turning it from inadequacy to perfection! INSTAGRAM! https://www.instagram.com/disabledandproudpodcast/?hl=en: https://www.instagram.com/disabledandproudpodcast/?hl=en…
 
Brooke talks with Nana, who shares his unique perspective on living with a disability. Nana discusses his childhood experiences, including the moment he learned about his tracheostomy and how it shaped his understanding of himself. The conversation delves into the challenges of navigating school systems that often lack proper support for disabled students, as well as the impact of societal perceptions on career choices. Nana emphasises the importance of resilience and self-advocacy, encouraging listeners to ask questions and challenge uncomfortable norms. KEY TAKEAWAYS Disability is viewed as a unique entity rather than a limitation. This perspective emphasises the importance of individual experiences and how one chooses to define their own identity. Growing up with a disability can lead to feelings of confusion and disconnect, especially when parents do not openly discuss the nature of the disability. Understanding one's condition can take time, often not fully realised until adolescence. The educational system often lacks adequate support for students with disabilities. There can be significant gaps in understanding and resources, leading to periods of exclusion from school and a lack of tailored support. Career paths can be influenced by one's disability, with many individuals gravitating towards roles that allow them to help others. Personal experiences can foster a desire to advocate for disabled individuals in the workforce. BEST MOMENTS "I think if I was to be in that era again, I would be very forthcoming and wanting to know why am I like this?" "I don't allow someone's negativity towards how I look or how I sound to determine how I walk through life." "I think now, because the buzzword of EDI is being flung around, we're being put in a position where, okay, we have to take this box." VALUABLE RESOURCES https://podcasts.apple.com/gb/podcast/disabled-and-proud/id1621152878 HOST BIO Disabled and Proud is the show that brings listeners a different perspective on disability. Each week this podcast highlights an awesome disabled guest speaking about their own disability; why they are proud to be disabled and why they are proud to be themselves. The conversations in this show will look at what challenges these amazing people face socially, mentally, physically and life in general. This show is raw, open, honest, funny, welcoming and educational. Disabled & Proud does exactly what it says on the tin! And whilst we are creating this space for disabled people to be unashamedly themselves, without the need to conform to society, this is also not about toxic positivity. This show will be shining a big, bright light on disability without it being “Paralympic or pity”. As you will hear disability is WHOLE, COMPLETE & PERFECT and whilst the topic of disability can be quite heavy - and we definitely don't shy away from the bad days - this podcast is also about having fun too! Our aim is to play a part in reclaiming the word disability - turning it from inadequacy to perfection! INSTAGRAM! https://www.instagram.com/disabledandproudpodcast/?hl=en: https://www.instagram.com/disabledandproudpodcast/?hl=en…
 
Brooke sits down with Terri, a passionate advocate for disability representation and the founder of a charity focused on supporting individuals with multiple sclerosis (MS). Terri shares her journey of navigating life with an invisible disability, discussing the challenges of obtaining a diagnosis and the misconceptions surrounding disabilities. The conversation highlights the importance of community, representation, and the power of embracing one's disability as a catalyst for personal growth and change. KEY TAKEAWAYS Embracing disability can lead to personal growth and new opportunities, such as becoming an author or starting a consultancy, which may not have been pursued otherwise. There is a significant lack of diverse representation in the disability community, particularly for people of colour. Creating visibility for different experiences is crucial for fostering inclusivity. The journey to diagnosis can be fraught with challenges, including medical misogyny and delays in receiving information. Personal experiences highlight the need for better communication and understanding within the healthcare system. Establishing a charity that connects individuals with similar disabilities fosters a sense of belonging and reduces feelings of isolation. Events and experiences can help individuals engage socially and feel supported. Developing patience is essential when dealing with medical professionals and navigating the complexities of disability. Embracing one's journey and focusing on helping others can provide purpose and strength. BEST MOMENTS "I feel like it's almost pushed me to do things that I might not have done if I was quote unquote well." "I didn't want to stay in a space where I was unhappy and it was causing me more stress." "I feel like people also forget that I have the same diagnosis that the charity is based around." "You can't choose how people feel towards a situation." VALUABLE RESOURCES https://podcasts.apple.com/gb/podcast/disabled-and-proud/id1621152878 HOST BIO Disabled and Proud is the show that brings listeners a different perspective on disability. Each week this podcast highlights an awesome disabled guest speaking about their own disability; why they are proud to be disabled and why they are proud to be themselves. The conversations in this show will look at what challenges these amazing people face socially, mentally, physically and life in general. This show is raw, open, honest, funny, welcoming and educational. Disabled & Proud does exactly what it says on the tin! And whilst we are creating this space for disabled people to be unashamedly themselves, without the need to conform to society, this is also not about toxic positivity. This show will be shining a big, bright light on disability without it being “Paralympic or pity”. As you will hear disability is WHOLE, COMPLETE & PERFECT and whilst the topic of disability can be quite heavy - and we definitely don't shy away from the bad days - this podcast is also about having fun too! Our aim is to play a part in reclaiming the word disability - turning it from inadequacy to perfection! INSTAGRAM! https://www.instagram.com/disabledandproudpodcast/?hl=en: https://www.instagram.com/disabledandproudpodcast/?hl=en…
 
Brooke talks to Ahbid Choudry, a passionate advocate for disability rights and the founder of Cabability, a service dedicated to providing wheelchair-accessible transportation. Ahbid shares his personal journey of living with a disability, emphasising the importance of dignity over equality and the need for compassion in the treatment of disabled individuals. He reflects on his challenging childhood, the misdiagnoses he faced, and how these experiences shaped his perspective on life and work. The discussion delves into the significance of education, the power of acceptance, and the three key steps to achieving personal goals: taking ownership of one's life, recognising individual abilities, and striving for achievement. KEY TAKEAWAYS True respect and acknowledgment comes from recognising and maintaining a person's dignity rather than merely treating them as equals. The journey of living with a disability from childhood through adulthood has shaped the understanding of challenges faced. Acceptance of one's disability is crucial for personal growth and empowerment. The creation of Cabability stemmed from personal experiences with inaccessible transportation. The focus on compassion and understanding the specific needs of disabled individuals is central to providing effective services. Education is highlighted as a vital tool for personal development. Learning and understanding one's abilities can lead to greater achievements and a more fulfilling life. BEST MOMENTS "I am disabled, but I don’t feel disabled... I don’t have the time to dwell on my disability because I’m working and trying to provide for myself and my family." "It’s not equality that we need as disabled people. Equality is just a big word that sounds good. As a person with a disability, I want dignity." "When you put your life in the hands of facilitators, you lose ownership. Take ownership of your life; no one else will." "I think there's a lot to be said in almost not having that time to ruminate on anything and just cracking on." "Disabled people are probably the most ignored in society. This needs to be highlighted." VALUABLE RESOURCES https://podcasts.apple.com/gb/podcast/disabled-and-proud/id1621152878 HOST BIO Disabled and Proud is the show that brings listeners a different perspective on disability. Each week this podcast highlights an awesome disabled guest speaking about their own disability; why they are proud to be disabled and why they are proud to be themselves. The conversations in this show will look at what challenges these amazing people face socially, mentally, physically and life in general. This show is raw, open, honest, funny, welcoming and educational. Disabled & Proud does exactly what it says on the tin! And whilst we are creating this space for disabled people to be unashamedly themselves, without the need to conform to society, this is also not about toxic positivity. This show will be shining a big, bright light on disability without it being “Paralympic or pity”. As you will hear disability is WHOLE, COMPLETE & PERFECT and whilst the topic of disability can be quite heavy - and we definitely don't shy away from the bad days - this podcast is also about having fun too! Our aim is to play a part in reclaiming the word disability - turning it from inadequacy to perfection! INSTAGRAM! https://www.instagram.com/disabledandproudpodcast/?hl=en: https://www.instagram.com/disabledandproudpodcast/?hl=en…
 
Brooke is joined by the marvellous Adam Fare, who shares his journey of living with multiple disabilities, including autism, ADHD, chronic bowel issues, and an eating disorder. He reflects on his childhood, struggling with undiagnosed conditions and the challenges he faced in school. Despite facing burnout and difficult medical decisions, Adam emphasises the importance of setting boundaries and being true to oneself. He discusses the impact of his disabilities on his relationships with family and friends, highlighting the value of empathy and support. Adam also touches on the misconceptions and odd questions he has encountered regarding his colostomy bag, emphasising the need for understanding and respect towards individuals with disabilities. KEY TAKEAWAYS Adam prefers to use identity-first language to refer to his disabilities, highlighting the importance of personal preference in how individuals identify themselves. Growing up with undiagnosed autism, ADHD, and chronic health issues made childhood difficult for Adam, emphasising the challenges of navigating life without proper understanding and support. Adam's experience highlights the importance of recognising and respecting personal boundaries, especially in managing disabilities and coping with changing circumstances over time. Through his struggles, Adam developed a strong sense of empathy and support for others, showcasing the positive impact of personal challenges on fostering compassion and understanding. Adam's story underscores the need for society to move beyond superficial campaigns and embrace genuine acceptance and respect for individuals with disabilities. BEST MOMENTS "I use identity first language personally for my disability, so I class myself as a disabled person." "I think people just need to judge less, to be honest with you." "It's almost like in a cycle. for me. So I go through cycles where I think I can manage it and I just burn out, burn out, burn out, burn out, crisis." "I think people are naturally very curious, which is great. Curiosity is actually really interesting." VALUABLE RESOURCES https://podcasts.apple.com/gb/podcast/disabled-and-proud/id1621152878 HOST BIO Disabled and Proud is the show that brings listeners a different perspective on disability. Each week this podcast highlights an awesome disabled guest speaking about their own disability; why they are proud to be disabled and why they are proud to be themselves. The conversations in this show will look at what challenges these amazing people face socially, mentally, physically and life in general. This show is raw, open, honest, funny, welcoming and educational. Disabled & Proud does exactly what it says on the tin! And whilst we are creating this space for disabled people to be unashamedly themselves, without the need to conform to society, this is also not about toxic positivity. This show will be shining a big, bright light on disability without it being “Paralympic or pity”. As you will hear disability is WHOLE, COMPLETE & PERFECT and whilst the topic of disability can be quite heavy - and we definitely don't shy away from the bad days - this podcast is also about having fun too! Our aim is to play a part in reclaiming the word disability - turning it from inadequacy to perfection! INSTAGRAM! https://www.instagram.com/disabledandproudpodcast/?hl=en: https://www.instagram.com/disabledandproudpodcast/?hl=en…
 
Brooke welcomes Kirsty and Xander from Our Chaotic Adventure, a couple who met while playing wheelchair basketball. They talk about their personal experiences with disability, including Kirsty's journey from childhood with a disability to becoming an amputee, and Xander's sudden spinal injury that led to paralysis. They discuss their perspectives on disability, the medicalisation of disabilities, and the importance of representation in the medical field. Xander, a medical student, shares his efforts to advocate for disability inclusion in medical education. The couple also reflects on their relationship, long-distance challenges, and their upcoming wedding. KEY TAKEAWAYS It's vital to have disabled individuals in the medical field to provide a holistic view of care and treatment. Overcoming societal perceptions and ignorance about disabilities is key, especially in professions like medicine. Embrace disability and push boundaries to achieve personal and professional goals. We must better advocate for a shift towards a more inclusive and less medicalised approach to disability. We should always push to demonstrate that disabilities should not limit one's aspirations or capabilities, but rather open up new possibilities and perspectives. BEST MOMENTS "I see disabled people now and I'm like, come on, just do it. I would definitely not give sound medical advice to a disabled person. Buy the book, don't do that." "I think it's opened up a lot of different avenues that I didn't expect in different sports. And also as well, I've just actually heard today that I received a place on a master's program for physiotherapy." "I think it's one of those things that actually it's really important to prove that. So that's why I'm quite amped about trying to improve that. Because I think it's an awesome job and I want more disabled people to do it." "I've spoken to a lot of people, I genuinely have spoken to a lot of people that have said to me that I would love to do medicine but I'm in a wheelchair." VALUABLE RESOURCES https://podcasts.apple.com/gb/podcast/disabled-and-proud/id1621152878 HOST BIO Disabled and Proud is the show that brings listeners a different perspective on disability. Each week this podcast highlights an awesome disabled guest speaking about their own disability; why they are proud to be disabled and why they are proud to be themselves. The conversations in this show will look at what challenges these amazing people face socially, mentally, physically and life in general. This show is raw, open, honest, funny, welcoming and educational. Disabled & Proud does exactly what it says on the tin! And whilst we are creating this space for disabled people to be unashamedly themselves, without the need to conform to society, this is also not about toxic positivity. This show will be shining a big, bright light on disability without it being “Paralympic or pity”. As you will hear disability is WHOLE, COMPLETE & PERFECT and whilst the topic of disability can be quite heavy - and we definitely don't shy away from the bad days - this podcast is also about having fun too! Our aim is to play a part in reclaiming the word disability - turning it from inadequacy to perfection! INSTAGRAM! https://www.instagram.com/disabledandproudpodcast/?hl=en: https://www.instagram.com/disabledandproudpodcast/?hl=en…
 
Brooke talks to Pippa, a guest with ME, about her journey so far, including the challenges of managing symptoms like fatigue and chronic pain. She highlights the importance of trusting one's intuition and seeking answers when dealing with a chronic illness. The conversation also delves into the impact of Pippa's diagnosis on her life, from being a dancer to transitioning to a writer. Pippa also touches on the unsolicited advice and bizarre questions she receives in public about her disability, emphasising the need for understanding and respect. KEY TAKEAWAYS Despite challenges, Pippa expresses gratitude for her abilities and newfound ambition, driven by her chronic illness experience. We often receive unsolicited advice and questions about our disabilities, emphasising the need for better understanding and respect. Through blogging and writing a book, Pippa finds a platform to share her experiences and advocate for those with chronic illnesses. There is a level of absurdity of ableism in society, which requires listening and understanding rather than offering unsolicited advice. BEST MOMENTS "I tailor my answer depending on who's asking a lot of the time, but in a nutshell I say I have a chronic illness called ME." "I think the fact that people see a younger wheelchair user, and I'm also aware that I look a lot younger than I actually am, I think people have this desire to help but don't realise that their interpretation of helping just makes things so much worse." "I'm more ambitious now, even though I have so much less usable energy per day, I feel as though I've got a stronger desire to do what I can and figure out what I can do with that level of ambition." "I do think it's important not to do things purely for other people because I've fallen into that trap in the past but if you're able to do something that fulfils you on a personal level but It also provides support or entertainment or just something of substance for other people." VALUABLE RESOURCES https://podcasts.apple.com/gb/podcast/disabled-and-proud/id1621152878 HOST BIO Disabled and Proud is the show that brings listeners a different perspective on disability. Each week this podcast highlights an awesome disabled guest speaking about their own disability; why they are proud to be disabled and why they are proud to be themselves. The conversations in this show will look at what challenges these amazing people face socially, mentally, physically and life in general. This show is raw, open, honest, funny, welcoming and educational. Disabled & Proud does exactly what it says on the tin! And whilst we are creating this space for disabled people to be unashamedly themselves, without the need to conform to society, this is also not about toxic positivity. This show will be shining a big, bright light on disability without it being “Paralympic or pity”. As you will hear disability is WHOLE, COMPLETE & PERFECT and whilst the topic of disability can be quite heavy - and we definitely don't shy away from the bad days - this podcast is also about having fun too! Our aim is to play a part in reclaiming the word disability - turning it from inadequacy to perfection! INSTAGRAM! https://www.instagram.com/disabledandproudpodcast/?hl=en: https://www.instagram.com/disabledandproudpodcast/?hl=en…
 
Brooke takes a solo approach to highlight the powerful messages shared by the audience about Disability Pride Month. Through reading and discussing four standout responses, she delves into the importance of embracing disability pride, breaking societal molds, promoting visibility, and advocating for representation in various spheres of life. KEY TAKEAWAYS Disability pride is an antidote for internalised ableism and a way to combat societal biases and expectations towards disabled individuals. It is important to raise awareness, promote visibility, and ensure representation of disabled people in leadership roles to inspire younger generations and break stereotypes. Disability pride is a journey that involves self-acceptance, resilience, and embracing one's authentic self, even in the face of societal challenges. Celebrating diversity and showcasing the talents and achievements of disabled individuals helps challenge preconceived notions and promotes inclusivity. By sharing lived experiences, advocating for change, and believing in oneself, disabled individuals can pave the way for a more inclusive and accepting society. BEST MOMENTS "Disability pride is almost the... the cure is not the right word, because I don't like the word cure, but I think it's the thing that really tackles ableism the most, is being able to have pride in who you are as a disabled person." "Without disability, there's no ingenuity." "Disability pride is about breaking out of the box so that we can fit to us." "Disability pride offers me the chance to reflect on my self-acceptance journey over the years." VALUABLE RESOURCES https://podcasts.apple.com/gb/podcast/disabled-and-proud/id1621152878 HOST BIO Disabled and Proud is the show that brings listeners a different perspective on disability. Each week this podcast highlights an awesome disabled guest speaking about their own disability; why they are proud to be disabled and why they are proud to be themselves. The conversations in this show will look at what challenges these amazing people face socially, mentally, physically and life in general. This show is raw, open, honest, funny, welcoming and educational. Disabled & Proud does exactly what it says on the tin! And whilst we are creating this space for disabled people to be unashamedly themselves, without the need to conform to society, this is also not about toxic positivity. This show will be shining a big, bright light on disability without it being “Paralympic or pity”. As you will hear disability is WHOLE, COMPLETE & PERFECT and whilst the topic of disability can be quite heavy - and we definitely don't shy away from the bad days - this podcast is also about having fun too! Our aim is to play a part in reclaiming the word disability - turning it from inadequacy to perfection! INSTAGRAM! https://www.instagram.com/disabledandproudpodcast/?hl=en: https://www.instagram.com/disabledandproudpodcast/?hl=en…
 
Brooke welcomes special guests Nick and Isaac, to discuss the concept of Disability Pride and share their personal journeys towards embracing their disabilities. They emphasise the importance of authenticity and being true to oneself, highlighting the power of sharing personal stories and experiences. They also reflect on the impact of being open and honest about their disabilities, both online and in their daily lives, expressing their hopes for future Disability Pride Months, advocating for a more inclusive and supportive society that values and respects individuals with disabilities. KEY TAKEAWAYS Disability pride is about being authentic and true to oneself, embracing one's identity and sharing the realities of living with a disability. Sharing personal stories and experiences can have a profound impact on others, creating connections and fostering understanding within the community. Embracing disability pride involves accepting oneself, making adaptations, and being open and honest about one's journey. The future of Disability Pride Month should involve a movement that goes beyond a tick box exercise, with corporations and organizations actively supporting accessibility and inclusion. Advocating for a dedicated senior disabilities minister and government commitment to supporting people with disabilities is crucial for progress and recognition within society. BEST MOMENTS "Be you. Find out who you are, what you are. Accept the fact that you need to adapt, figure out who you are, who you want to be, who you want people to see you be, and focus on being you." "I would love to see a disability pride march around the world. People being out and going through the streets of London or wherever, just being themselves and showing the world, 'Yeah, we're here.'" "I would like to see Disability Pride Month become an actual movement and a whole celebration. For it to be done not just by people with disabilities or disability charities, but for other businesses and organisations to get involved." "I think it's being your authentic self. People can tell when you are not being you, when you're trying overly hard. Sometimes those kinds of things of not being trying to be overly polished and just being me means more." VALUABLE RESOURCES https://podcasts.apple.com/gb/podcast/disabled-and-proud/id1621152878 HOST BIO Disabled and Proud is the show that brings listeners a different perspective on disability. Each week this podcast highlights an awesome disabled guest speaking about their own disability; why they are proud to be disabled and why they are proud to be themselves. The conversations in this show will look at what challenges these amazing people face socially, mentally, physically and life in general. This show is raw, open, honest, funny, welcoming and educational. Disabled & Proud does exactly what it says on the tin! And whilst we are creating this space for disabled people to be unashamedly themselves, without the need to conform to society, this is also not about toxic positivity. This show will be shining a big, bright light on disability without it being “Paralympic or pity”. As you will hear disability is WHOLE, COMPLETE & PERFECT and whilst the topic of disability can be quite heavy - and we definitely don't shy away from the bad days - this podcast is also about having fun too! Our aim is to play a part in reclaiming the word disability - turning it from inadequacy to perfection! INSTAGRAM! https://www.instagram.com/disabledandproudpodcast/?hl=en: https://www.instagram.com/disabledandproudpodcast/?hl=en…
 
This week, Brooke welcomes Jamie and Celia on Disabled and Proud's Disability Pride Month special. They discuss their personal experiences with disability pride, unlearning ableism, and the challenges faced by the disabled community. Jamie shares a journey of overcoming internalised ableism and finding empowerment through meaningful employment, while Celia emphasises the importance of corporate responsibility in promoting disability inclusion. They highlight the need for tangible action, accountability, and ongoing efforts to create a more inclusive society. KEY TAKEAWAYS Disability Pride is about change, hope, and amplifying diverse voices to celebrate the diversity of disability experiences. Disability Pride is not about enjoying being disabled but accepting oneself and being proud of the community's strengths and achievements. Unlearning ableism promotes inclusivity by addressing the impact of ableism on individuals and providing tools to navigate and challenge it. Overcoming disability is not a realistic goal, as disability is a part of one's identity and should be accepted rather than overcome. Corporate responsibility during Disability Pride Month should focus on tangible actions, such as running anti-ableism audits, supporting communities, and investing in disability inclusion beyond tokenism. BEST MOMENTS "Disability pride is about celebrating the work that's going on. So actually, I'm not celebrating Pride to the fullest, not because of my own fault, but because again, society isn't taking it on board." "I think for me that is the pride because I think if I didn't get into this role, I probably wouldn't be sitting here today. Like I probably would have out alive myself a long time ago." "It's not my accountability and responsibility. It's your burden of accountability and responsibility. And I think the natural tendency to applaud someone halfway through, you know they've done the bare minimum." "It's not about tokenism, flying a flag. Great, it's a starting point. As I said to Jamie the other day, I'm not going to applaud you until you've finished." VALUABLE RESOURCES https://podcasts.apple.com/gb/podcast/disabled-and-proud/id1621152878 HOST BIO Disabled and Proud is the show that brings listeners a different perspective on disability. Each week this podcast highlights an awesome disabled guest speaking about their own disability; why they are proud to be disabled and why they are proud to be themselves. The conversations in this show will look at what challenges these amazing people face socially, mentally, physically and life in general. This show is raw, open, honest, funny, welcoming and educational. Disabled & Proud does exactly what it says on the tin! And whilst we are creating this space for disabled people to be unashamedly themselves, without the need to conform to society, this is also not about toxic positivity. This show will be shining a big, bright light on disability without it being “Paralympic or pity”. As you will hear disability is WHOLE, COMPLETE & PERFECT and whilst the topic of disability can be quite heavy - and we definitely don't shy away from the bad days - this podcast is also about having fun too! Our aim is to play a part in reclaiming the word disability - turning it from inadequacy to perfection! INSTAGRAM! https://www.instagram.com/disabledandproudpodcast/?hl=en: https://www.instagram.com/disabledandproudpodcast/?hl=en…
 
Brooke talks to Emma, the mother of a disabled child, about her experiences and insights. Emma shares her journey from pregnancy to raising her daughter, Dottie, who was born on her due date. She reflects on the challenges of navigating the healthcare system and advocating for Dottie's needs. Emma discusses the importance of authentic representation of disability in media and the power of storytelling. She also touches on the struggles of self-care and the emotional toll of advocating for her daughter in various settings. KEY TAKEAWAYS Advocating for a disabled child in medical settings can be emotionally challenging, but it is crucial to ensure the child's needs are met and their voice is heard. It involves being confident, determined, and prepared to stand up for what is best for the child. Authentic representation of disability in media and storytelling is essential for empowering individuals and changing societal perceptions. It is important to tell untold stories and showcase the diversity within the disabled community. Balancing self-care with the responsibilities of caring for a disabled child is crucial. Recognising when to take a break, setting boundaries, and surrounding oneself with supportive individuals are key aspects of self-care for a parent carer. Questioning assumptions and biases about disability is important in advocating for a disabled child. It involves resisting harmful tropes, advocating for authentic representation, and challenging conflicting opinions from professionals. BEST MOMENTS "I think when she was first born. For the first sort of five months, we were in and out of hospital a lot. And it wasn't like we were told in that time, oh, she's disabled, or she has this condition, or it was sort of a really weird mix of what's happening, panic, sort of worry." "I've definitely sort of evolved my thinking and perception of disability as a direct result of being Dottie's mum." "I think it's about having those conversations that you wouldn't necessarily normally have with your friends down the pub. Because actually, they're not going to be the ones that necessarily grow your mindset." "Sometimes some people aren't able to be saved. That is not a you problem, that is a them problem." VALUABLE RESOURCES https://podcasts.apple.com/gb/podcast/disabled-and-proud/id1621152878 HOST BIO Disabled and Proud is the show that brings listeners a different perspective on disability. Each week this podcast highlights an awesome disabled guest speaking about their own disability; why they are proud to be disabled and why they are proud to be themselves. The conversations in this show will look at what challenges these amazing people face socially, mentally, physically and life in general. This show is raw, open, honest, funny, welcoming and educational. Disabled & Proud does exactly what it says on the tin! And whilst we are creating this space for disabled people to be unashamedly themselves, without the need to conform to society, this is also not about toxic positivity. This show will be shining a big, bright light on disability without it being “Paralympic or pity”. As you will hear disability is WHOLE, COMPLETE & PERFECT and whilst the topic of disability can be quite heavy - and we definitely don't shy away from the bad days - this podcast is also about having fun too! Our aim is to play a part in reclaiming the word disability - turning it from inadequacy to perfection! INSTAGRAM! https://www.instagram.com/disabledandproudpodcast/?hl=en: https://www.instagram.com/disabledandproudpodcast/?hl=en…
 
Brooke talks to Robert, a neurodivergent individual with dyspraxia and a cancer survivor, discussing his journey and experiences with disabilities. Robert shares insights on the lack of accessibility he faced during his cancer diagnosis and how it influenced his perspective on inclusivity. He delves into his inclusive design consultancy, Inclus, aiming to make consumer products more accessible for social minority groups. Together they highlight the importance of inclusive design and challenge the stereotypical perceptions of disability. Robert reflects on resilience and the need for a broader understanding of disability beyond visible markers. KEY TAKEAWAYS Disability is a wide spectrum, and it's important to understand that it's not limited to visible disabilities like wheelchair use. Small incremental changes in design can make products more accessible and inclusive for all individuals, including those with disabilities. Overcoming challenges and finding coping mechanisms can lead to resilience and innovative solutions, even in the face of adversity. Embracing one's unique traits and experiences, regardless of disability, can lead to personal growth and success. It's crucial to have empathy and understanding towards individuals with disabilities, avoiding assumptions and embracing diversity in disability experiences. BEST MOMENTS "I think that's such a poignant snippet and takeaway because it comes back to that well what what does disability look like and actually there is not a one-size-fits-all." "I always found a way to be resilient and always found a way to then show up in a different way, in a way that then made people go, oh, it's quite impressive." "It's all just people talking and that's it. It's not, it doesn't need to define your world, it doesn't need to define your experience." VALUABLE RESOURCES https://podcasts.apple.com/gb/podcast/disabled-and-proud/id1621152878 HOST BIO Disabled and Proud is the show that brings listeners a different perspective on disability. Each week this podcast highlights an awesome disabled guest speaking about their own disability; why they are proud to be disabled and why they are proud to be themselves. The conversations in this show will look at what challenges these amazing people face socially, mentally, physically and life in general. This show is raw, open, honest, funny, welcoming and educational. Disabled & Proud does exactly what it says on the tin! And whilst we are creating this space for disabled people to be unashamedly themselves, without the need to conform to society, this is also not about toxic positivity. This show will be shining a big, bright light on disability without it being “Paralympic or pity”. As you will hear disability is WHOLE, COMPLETE & PERFECT and whilst the topic of disability can be quite heavy - and we definitely don't shy away from the bad days - this podcast is also about having fun too! Our aim is to play a part in reclaiming the word disability - turning it from inadequacy to perfection! INSTAGRAM! https://www.instagram.com/disabledandproudpodcast/?hl=en: https://www.instagram.com/disabledandproudpodcast/?hl=en…
 
Brooke has a candid conversation with Hannah, a guest who shares her journey of acquiring a disability in her early 20s and navigating life with chronic illness. Hannah discusses her experience with complex chronic illness, ME, and endometriosis, highlighting the challenges of being diagnosed and the stigma surrounding invisible illnesses. She reflects on the impact of her disabilities on her career choices and the process of accepting her authentic disabled self. The conversation delves into the differences in disability perception between the UK and the Netherlands, emphasising the importance of being able to show up as one's full disabled self. KEY TAKEAWAYS Hannah's journey of showing up as her full disabled self in Amsterdam highlights the importance of embracing authenticity and setting boundaries without feeling the need to conform to societal expectations. Hannah's insight on grief being an ongoing and ever-changing process emphasises the need to accept and live alongside grief rather than trying to overcome it completely. The comparison between the UK and the Netherlands in terms of prescription painkillers showcases the significance of a morally neutral approach to pain relief, allowing for more collaborative and sustainable treatment options. Hannah's experience of living a slower-paced, authentic life in Amsterdam and inspiring her friends to reconsider their own lifestyles highlights the power of leading by example and sparking positive change in others. BEST MOMENTS "There's such a distinct before and now there's the people who knew you before you got sick, the ways you were, the things you did." "I think the one other thing I want to say about culture, which I think is quite important for people who live with chronic pain, is I find, at least in my experience, there's a much more morally neutral view to prescription painkillers." VALUABLE RESOURCES https://podcasts.apple.com/gb/podcast/disabled-and-proud/id1621152878 HOST BIO Disabled and Proud is the show that brings listeners a different perspective on disability. Each week this podcast highlights an awesome disabled guest speaking about their own disability; why they are proud to be disabled and why they are proud to be themselves. The conversations in this show will look at what challenges these amazing people face socially, mentally, physically and life in general. This show is raw, open, honest, funny, welcoming and educational. Disabled & Proud does exactly what it says on the tin! And whilst we are creating this space for disabled people to be unashamedly themselves, without the need to conform to society, this is also not about toxic positivity. This show will be shining a big, bright light on disability without it being “Paralympic or pity”. As you will hear disability is WHOLE, COMPLETE & PERFECT and whilst the topic of disability can be quite heavy - and we definitely don't shy away from the bad days - this podcast is also about having fun too! Our aim is to play a part in reclaiming the word disability - turning it from inadequacy to perfection! INSTAGRAM! https://www.instagram.com/disabledandproudpodcast/?hl=en: https://www.instagram.com/disabledandproudpodcast/?hl=en…
 
Brooke meets David, a wheelchair user with cerebral palsy who shares his journey and experiences with disability. David discusses his childhood surgeries, the impact of his disability on his education, and the challenges he faced in the workplace. He also talks about the creation of Buddies For All, a social isolation tackling initiative born out of the pandemic. KEY TAKEAWAYS David created a platform called Buddies For All to tackle social isolation among disabled individuals, providing opportunities for social and leisure activities. There are challenges in navigating the university experience as a mature student, highlighting issues of ableism and social integration. David shares experiences of ableism in the workplace, emphasizing the importance of addressing uncomfortable conversations around disability. We require nuanced conversations and discomfort in addressing misconceptions. We need to take a nuanced view on being disabled and proud, acknowledging that it depends on the day and circumstances, reflecting the complexity of disability identity. BEST MOMENTS "The trouble with me is I can't see, my good points tend to focus on the bad stuff, so I tend to feed that to other people too." "I suppose that I never give up, I keep trying. So it's a never say die attitude." "I do think that point is really quite key is that sometimes it is a yes or no answer, and it completely depends upon the person." "Kids being curious around disability is a good thing because it's almost like it gives you a moment to be like, do you know what, like being disabled, like it happens, it's fine." VALUABLE RESOURCES https://podcasts.apple.com/gb/podcast/disabled-and-proud/id1621152878 HOST BIO Disabled and Proud is the show that brings listeners a different perspective on disability. Each week this podcast highlights an awesome disabled guest speaking about their own disability; why they are proud to be disabled and why they are proud to be themselves. The conversations in this show will look at what challenges these amazing people face socially, mentally, physically and life in general. This show is raw, open, honest, funny, welcoming and educational. Disabled & Proud does exactly what it says on the tin! And whilst we are creating this space for disabled people to be unashamedly themselves, without the need to conform to society, this is also not about toxic positivity. This show will be shining a big, bright light on disability without it being “Paralympic or pity”. As you will hear disability is WHOLE, COMPLETE & PERFECT and whilst the topic of disability can be quite heavy - and we definitely don't shy away from the bad days - this podcast is also about having fun too! Our aim is to play a part in reclaiming the word disability - turning it from inadequacy to perfection! INSTAGRAM! https://www.instagram.com/disabledandproudpodcast/?hl=en: https://www.instagram.com/disabledandproudpodcast/?hl=en…
 
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