Cheat Codes: A Sickle Cell Podcast, is led by expert hosts Dr. Ahmar Zaidi and Dr. Mike Callaghan from the Comprehensive Sickle Cell Center at the Children's Hospital of Michigan, and produced by BloodStream Media. Each episode of Cheat Codes: A Sickle Cell Podcast brings listeners a series of segments packed with critical education and research information that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Cheat Co ...
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Empowering Lives: Dr. Simone Uwan’s Journey with Sickle Cell Disease
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In this special “Lunch and Learn” session sponsored by the Agios Diversity Council, Dr. Simone Uwan shares her inspiring journey living with and advocating for sickle cell disease. Dr. Uwan discusses her background, achievements in medicine and advocacy, and her personal experiences with misdiagnosis and the challenges faced by sickle cell patients…
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Janie Davis, Director of Patient Advocacy at Agios
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14:29
Holly John, Agios’ Senior Director of Patient Advocacy, has a partner working with her on sickle cell disease patient advocacy! On this episode of Cheat Codes: A Sickle Cell Podcast, Dr. Z and Dr. C Janie Davis. Janie is the Director of Patient Advocacy at Agios Pharmaceuticals and is excited to work with the sickle cell community. SHOW DESCRIPTION…
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The Importance of Community-Based Organizations for the SCD Community
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45:48
Join Dr. Z and Dr. C as they host a live panel from Florida with key figures from various community-based organizations (CBOs) dedicated to supporting those affected by sickle cell disease. Panelists share insights on the vital roles CBOs play, their unique challenges, successes, and the importance of collaborations with healthcare providers, pharm…
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The Warrior Poet: A Rising Star: Dr. Alex Glaros
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27:44
On this episode of Cheat Codes: A Sickle Cell Podcast, we’re coming to you again from Detroit, Michigan. Here, the docs sit down with Dr. Alex Glaros. Dr. Glaros is a Pediatric Hematologist-Oncologist at Children’s Hospital of Michigan. SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people…
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Revving Up for Clinical Trial Awareness in the Motor City
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On this episode of Cheat Codes: A Sickle Cell Podcast, we’re live in the Motor City: Detroit, Michigan. This live event featured Dr. Z and Dr. C interviewing a panel of esteemed guests including Davinna Christian, Dr. Alex Glaros and Clifton Kirkman, II discussing clinical trial awareness. We also hear from Dr. Wanda Whitten-Shurney at the end of t…
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Sickle Cell Advocacy with Miss Teen Virginia, Ayana Johnson
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On this episode of Cheat Codes: A Sickle Cell Podcast, we speak with Ayana Johnson. In addition to being a sickle cell warrior, Ayana is also Miss Teen Virginia ‘22, a teen ambassador of the SCDAA and founder of Ay’s Hope Cells. SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are…
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Replay: International Legends of Sickle Cell: Professor Clarisse Lobo & Dr. Kleber Fertrin
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32:05
This episode of Cheat Codes is our first bilingual podcasting experience. In the first half of the episode, Dr. Z and Dr. C speak with Professor Clarisse Lobo and Dr. Kleber Fertrin in English about their experience with sickle cell in Brazil. In the second half, we hear from them in their native Portuguese language. SHOW DESCRIPTION Cheat Codes is…
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hhttp://On this episode of Cheat Codes: A Sickle Cell Podcast, we speak with Regina Hartfield, CEO of the Sickle Cell Disease Association of America, Inc (SCDAA). SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strive…
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REPLAY: RISE UP for Sickle Cell Disease - A Warrior Panel
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47:16
http://On this episode, Dr. Z and Dr. C talk to a panel of Sickle Cell warriors who were part of the RISE UP campaign. RISE UP is the name of Agios’ phase two and phase three clinical trial for Sickle Cell Disease. The campaign itself was directed by the warriors to help the community know about the trial, to help educate, to help answer any questi…
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On this episode, Dr. Z and Dr. C talk to Dr. Carolyn Rowley and Elle Colle about Cayenne Wellness. Their mission is to increase the quality of life for individuals diagnosed with sickle cell disease in California by ensuring expert, unbiased, and comprehensive care.” Learn more about Cayenne Wellness at https://cayennewellness.org SHOW DESCRIPTION …
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Reproductive Health in Sickle Cell
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23:17
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On this episode, Dr. Z and Dr. C talk to “The Avengers” of Sickle Cell Disease aka Teonna Woolford, Cassandra Trimnell and Rae Blaylark about reproductive health in sickle cell disease. SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each epis…
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International Legends of Sickle Cell: Professor Clarisse Lobo & Dr. Kleber Fertrin
32:05
32:05
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32:05
This episode of Cheat Codes is our first bilingual podcasting experience. In the first half of the episode, Dr. Z and Dr. C speak with Professor Clarisse Lobo and Dr. Kleber Fertrin in English about their experience with sickle cell in Brazil. In the second half, we hear from them in their native Portuguese language. SHOW DESCRIPTION Cheat Codes is…
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Rising Stars in Sickle Cell: Dr. Oladipo Cole
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On this episode, Dr. Z and Dr. C talk shop with a rising star in sickle cell disease. Dr. Oladipo Cole is a fellow at Washington University in St. Louis, MO. He also has sickle cell disease. Here he talks about his journey from child living with sickle cell disease to physician working in the disease state. SHOW DESCRIPTION Cheat Codes is a podcast…
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Legends of Sickle Cell - Dr. Obiageli Nnodu
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Dr. Z and Dr. C welcome “Sickle Cell Legend” Dr. Obiageli Nnodu to the program. Dr. Nnodu is the Director of Centre For Sickle Cell Disease Research & Training at the (CESRTA) University of Abuja in Nigeria. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with …
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LIVE in New Orleans: A Red Cell Revolution
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We're LIVE from New Orleans, Louisiana! Listen to our live podcast panel featuring members of the sickle cell, pyruvate kinase deficiency, and thalassemia communities and leading KOL's in each field. We are proud to introduce the Red Cell Revolution! The Red Cell Revolution is an Agios patient advocacy movement that is driven by a relentless desire…
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Replay: Legends of Sickle Cell. The Momma Bears
1:01:46
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On this episode, Dr. Z and Dr. C talk to some very important advocates in the Sickle Cell community: “The Momma Bears”. Yvonne Carroll, Adrienne Shapiro and Pat Corley. Later in the episode we hear from Teonna Woolford, CEO of the Sickle Cell Reproductive Health Organization. Originally aired September 6, 2022. SHOW DESCRIPTION Cheat Codes is a pod…
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Getting to Know Doctors Ahmar Zaidi & Mike Callaghan
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On this episode, we’re turning our attention to our hosts: Dr. Ahmar Zaidi and Dr. Mike Callaghan. We’ll get to know them a little better and learn about their journey into medicine and sickle cell disease. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with c…
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Biba Tinga, Sickle Cell Disease Association of Canada
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32:28
Dr. Z and Dr. C are back! On this episode they speak with Biba Tinga, President & Executive Director of the Sickle Cell Disease Association of Canada. They also discuss the care of her son Ismaël who was diagnosed with the rare disease. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segment…
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A What Just Happened Episode of Cheat Codes with the Sickle Cell Consortium - Part 2
1:00:23
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1:00:23
Sharonda Sikes of the Sickle Cell Consortium will provide a recap of The Sickle Cell Warriors Convention with guests Dr. Lametra Scott, Dr. Simone Uwan and Francine Baker. The Sickle Cell Warriors Convention is a national community gathering, created and organized entirely by sickle cell patients and caregivers. Each year the Convention is hosted b…
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A What Just Happened Episode of Cheat Codes with the Sickle Cell Consortium
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39:21
Sharonda Sikes of the Sickle Cell Consortium will provide a recap of The Sickle Cell Warriors Convention with guests Dr. Tomia Austin and Mia Robinson. The Sickle Cell Warriors Convention is a national community gathering, created and organized entirely by sickle cell patients and caregivers. Each year the Convention is hosted by a partnership of s…
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Legends of Sickle Cell. The Momma Bears
1:01:46
1:01:46
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1:01:46
On this episode, Dr. Z and Dr. C talk to some very important advocates in the Sickle Cell community: “The Momma Bears”. Yvonne Carroll, Adrienne Shapiro and Pat Corley. Later in the episode we hear from Teonna Woolford, CEO of the Sickle Cell Reproductive Health Organization. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community t…
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Legends of Sickle Cell - Dr. Charles Jonassaint, Jude Jonassaint & Cassandra Trimnell
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On this episode, Dr. Z and Dr. C speak with Cassandra Trimnell of Sickle Cell 101, Dr. Charles Jonassaint & Jude Jonassaint. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and …
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Legends of Sickle Cell - Russell Ware, MD, PhD
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On this episode, Dr. Z and Dr. C talk to Sickle Cell Legend Russell Ware, MD, PhD SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, an…
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RISE UP for Sickle Cell Disease - A Warrior Panel
47:16
47:16
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47:16
On this episode, Dr. Z and Dr. C talk to a panel of Sickle Cell warriors who were part of the RISE UP campaign. RISE UP is the name of Agios’ phase two and phase three clinical trial for Sickle Cell Disease. The campaign itself was directed by the warriors to help the community know about the trial, to help educate, to help answer any questions the…
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Legends of Sickle Cell - Dr. Michael DeBaun & Shamonica Wiggins
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On this episode, Dr. Z and Dr. C debut a series about the “Legends of Sickle Cell”. They interview Dr. Michael DeBaun and patient legend Shamonica Wiggins. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need t…
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#48 - “Soaring to the Sky” How Patient Navigators are Changing Sickle Cell with Dr. Wally Smith
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Dr. Z and Dr. C talk shop with Dr. Wally Smith on how Patient Navigators are changing sickle cell disease. Show Notes: Episode Sponsor: Novartis, For 40 years Novartis has been committed to helping individuals living with sickle cell disease. Through research, educational resources and access programs, we will continue our efforts to support patien…
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#47 - “Reproductive Health in Sickle Cell” with Dr. Lydia Pecker
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Dr. C and guest host Amy Board of BloodStream Media talk to Dr. Lydia Pecker about Reproductive Health in Sickle Cell. Hear Dr. Pecker’s thoughts on menstrual cycles with sickle cell, fertility, contraception and more on this important, little discussed topic. A must listen! Show Notes: Episode Sponsor: Novartis. For 40 years Novartis has been comm…
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#46 - Fueled by Connections: Agios and the Sickle Cell Community with special guest host, Blaze Eppinger and guest Sarah Gheuens, Chief Medical Officer at Agios Pharmaceuticals.
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With the goal of getting a better understanding of Agios and their vision for partnering with the sickle cell community and being “fueled by connections,” join us as guest host, with special guest host, and patient advocate Blaze Eppinger returns to the show for a discussion with Agios’ and guest Sarah Gheuens, Chief Medical Officer, at Agios Pharm…
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#45 - “Man in the Arena” A Conversation with Dr. Mark T. Gladwin
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48:02
Cheat Codes welcomes Dr. Mark T. Gladwin to talk about Pulmonary hypertension in sickle cell disease with Dr. Z and Dr. C. Show Notes: Episode Sponsor: Novartis. For 40 years Novartis has been committed to helping individuals living with sickle cell disease. Through research, educational resources and access programs, we will continue our efforts t…
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In Remembrance of Hertz Nazaire
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1:02:47
On October 29th, 2021, Hertz Nazaire, a prominent sickle cell warrior and prolific artist, passed away at age 48. In honor of Hertz, we’re re-airing Dr. Z’s interview with him for Cheat Codes, originally published in December of 2020. Show Notes: Homegoing Expenses for Hertz Sickle Cell Disease: a battle for equality, justice and respect | Ahmar Za…
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#44 - Fueled by Connections: Agios and the Sickle Cell Community with special guest host, Blaze Eppinger and guests Darrin Miles, Agios Chief Commercial Officer and Agios Head of Patient Advocacy, Holly ...
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28:28
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28:28
With the goal of getting a better understanding of Agios and their vision for partnering with the sickle cell community, join us as guest host, Blaze Eppinger speaks with Darrin Miles, the Chief Commercial Officer and Holly John, the Head of Patient Advocacy both of Agios Pharmaceuticals. Show Notes: Guest Host Blaze Eppinger on Instagram Dr. Ahmar…
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#43 - “Can Gene Therapy Live Long and Prosper?” A Conversation with Dr. Mitch Weiss and Dr. Vijay Sankaran
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51:57
Dr. Z and Dr. C chop it up with two of the foremost experts (Mitch and Vijay) on the science of gene therapy in sickle cell disease. Show Notes: Episode Sponsor: Novartis, For 40 years Novartis has been committed to helping individuals living with sickle cell disease. Through research, educational resources and access programs, we will continue our…
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#42 - Pediatric to Adult Care - Transitioning with Sickle Cell Disease w/ Dr. Nirmish Shah
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43:05
Dr. Nirmish Shah, the Director of Duke University’s sickle cell transition program, joins Cheat Codes to discuss the numerous challenges associated with helping patients with sickle cell disease successfully transition from pediatric to adult care. Show Notes: Episode Sponsor: Novartis, For 40 years Novartis has been committed to helping individual…
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#41 - Sickle Cell in Jamaica and Around the World w/ Graham Serjeant
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42:14
Graham Serjeant, a British-born medical researcher best known for his multi-decade study of sickle cell disease in Jamaica, joins Cheat Codes to share stories and learnings from across his storied career. Show Notes: Episode Sponsor: Novartis, For 40 years Novartis has been committed to helping individuals living with sickle cell disease. Through r…
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#40 - Think COVID Through with Dr. Lewis Hsu.
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32:29
Dr. Z and Dr. C chop it up with Dr. Lewis Hsu, CMO of Sickle Cell Disease Association of America to get an update on COVID-19 and sickle cell disease! Show Notes: Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes) Subscribe to and rate Cheat Codes Conn…
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#39 - "Just Get Out of My Way": Mapillar is Making Moves
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38:43
Mapillar Dahn is a woman on a mission. Her organization, MTS, is not going to be stopped by anyone. She is advocacy personified. Dr. Z and Dr. C spend some time gleaning insight from this immense figure in sickle cell advocacy. Learn more about My Three Sicklers Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media For all i…
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#38 - You Bet Your Assay: A New Lab Test for Sickle Cell Disease
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33:26
Featuring Dr. Patrick Hines of Functional Fluidics. Functional Fluidics Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes) Subscribe to and rate Cheat Codes Subscribe to and rate The BloodStream Podcast Subscribe to and rate The Ask The Expert Podcast …
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#37 - Impact Players on Third and Long: Santonio Holmes and Martenzie Johnson
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51:48
Santonio Holmes, Super Bowl XLIII MVP and founder of the III & Long Foundation is joined by Martenzie Johnson, writer for ESPN's "The Undefeated", on this week's episode as they discuss the importance of Sickle Cell screening and advocacy within sports organizations, as well as their close and personal connections to Sickle Cell Disease and Trait. …
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What Just Happened - Best of Sickle Cell Conferences, #FSCDR21
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59:27
Drs. Z and C welcome back Dr. Lakiea Bailey of the Sickle Cell Consortium and a fantastic crew of doctors and warriors as they recap highlights from the recent Foundation for Sickle Cell Disease Research (#FSCDR21) symposia in another installment of the “Best of Sickle Cell Conferences” series. Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Tw…
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#36 - This is Why We Call it Advanced Practice
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51:07
Sickle Cell rockstars Mandy David and Maya Bloomberg join the show. Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes) Subscribe to and rate Cheat Codes Subscribe to and rate The BloodStream Podcast Subscribe to and rate The Ask The Expert Podcast Subs…
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#35 - Neighborly Love: Indiana is Changing the SCD Landscape
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54:25
In this episode Dr. Z and Dr. C sit down with sickle cell difference makers at the Indiana Hemophilia Treatment Center. Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes) Subscribe to and rate Cheat Codes Subscribe to and rate The BloodStream Podcast S…
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#34 - What Could be Better than Dr. Z - 2 Dr. Z's!
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1:03:05
Pain and health psychologist Dr. Rachel Zoffness joins to discuss a biopsychosocial approach to treating and managing pain. Book for kids is here Adult book is here Follow Dr. Zoffness on Twitter @drzoffness Follow Dr. Zoffness on Instagram @TheRealDocZoff Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media For all inquiri…
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#33 - Sickle Cell Disease and the Community Based Organization: How Wanda and Gary Are Making a Difference
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43:01
Dr. Z sits down with Dr. Wanda Shurney and Gary Gibson. Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes) Subscribe to and rate Cheat Codes Subscribe to and rate The BloodStream Podcast Subscribe to and rate The Ask The Expert Podcast Subscribe to and…
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#32 - Motown-Sickle's Back Again: Dr. Ingrid Sarnaik's Legacy in Detroit
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37:18
Dr. Ingrid Sarnaik ran the Sickle Cell Center in Detroit for decades. This is her legacy, and also ours. Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes) Subscribe to and rate Cheat Codes Subscribe to and rate The BloodStream Podcast Subscribe to and…
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#31 - Covid-19 Myth-Busting with Dr. Mobeen Rathore
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53:14
Dr. Z and Dr. C spend some time with Chief of Pediatric Infectious Disease at University of Florida, and nationally-recognized COVID-19 expert Dr. Mobeen Rathore to dispel some COVID-19 and vaccine myths. Sponsored by Agios Pharmaceuticals Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media For all inquiries: mailbag@blood…
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What Just Happened? - Best of Sickle Cell Conferences, #ASH20, Part 2 (pipeline therapies and new data for approved therapies)
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Dr. Lakiea Bailey from the Sickle Cell Consortium and Warrior University joins an all star cast of Cheat Code veterans to discuss the best science from the December American Society of Hematology meeting. Part 2 - pipeline therapies and new data for approved therapies Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media For…
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What Just Happened? - Best of Sickle Cell Conferences, #ASH20, Part 1 (Curative Therapies)
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Dr. Lakiea Bailey from the Sickle Cell Consortium and Warrior University joins an all star cast of Cheat Code veterans to discuss the best science from the December American Society of Hematology meeting. Part 1 - Curative therapies Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media For all inquiries: mailbag@bloodstreamm…
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#30 - Just Blaze: This Sickle Cell Advocate is on Fire
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Dr. Z and Dr. C hang out with Blaze Eppinger and learn about his journey with sickle cell disease. Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes) Subscribe to and rate Cheat Codes Subscribe to and rate The BloodStream Podcast Subscribe to and rate …
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#29 - Kickin' it with Dr. Krish: How One Man is Changing the Way we Think About Sickle Cell Cures
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Dr. Krish, a world-renowned bone marrow transplant/sickle cell physician from Children’s Healthcare of Atlanta, breaks down bone marrow transplant while talking about his road to prominence in the field. Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Code…
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#28 - Finding Opportunity in Crisis; How Phill Okwo is Making Us Better Doctors
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Phill Okwo is a warrior extraordinaire. He’s a father, a brother, and a son. He’s handling his business and giving us his wisdom along his journey. We are beyond thrilled to have him on Cheat Codes! Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes) Su…
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