Cele mai bune Michael J Fox Foundation podcast-uri (2024)

1
Ask Us Anything About Deep Brain Stimulation Surgery Day 40:34

4d ago40:34

40:34

Each person living with Parkinson’s disease (PD) will have a unique journey with their treatments, including the decision to have deep brain stimulation (DBS), which is a surgical procedure to treat Parkinson’s motor symptoms. While DBS isn’t suitable for everyone, it can be helpful in the right person, and it’s a complex, lifelong choice. And alth…

1
Hitting Stride: Research Advances on Walking with Parkinson’s (Webinar Audio) 48:08

25d ago48:08

48:08

Troubles with gait – slow walking, shuffling steps and foot dragging and more – can be symptoms of Parkinson’s. In audio from this Third Thursdays Webinar, our experts explore the robust research efforts underway to understand and treat gait issues, from physical rehab interventions to deep brain stimulation modifications to wearable robots designe…

1
Perspectives on Navigating Racial Bias and Stigma in Parkinson's Disease 44:55

1M ago44:55

44:55

In this podcast, four people from different backgrounds have a candid conversation on race, stigma and Parkinson’s. They share their experiences trying to find culturally competent medical professionals, overcoming the barriers to research participation, and communicating with their communities about their diagnosis. And they offer tips and advice …

1
A Conversation on Parkinson’s-Related Hallucinations and Delusions (Webinar Audio) 54:03

2M ago54:03

54:03

Parkinson’s disease brings with it many potential symptoms, including hallucinations (seeing things that are not there) and delusions (believing things that are not true). Not everyone will experience these symptoms and not everyone who does will find them bothersome, but it can be a source of uncertainty and concern for people living with the dise…

1
Your Daily Dose: Managing Parkinson’s Medications (Webinar Audio) 55:46

3M ago55:46

55:46

Finding the right Parkinson’s treatment plan can be a trial-and-error process. The kind of medication, the dosage, the timing and lifestyle factors are all important pieces of the puzzle. In audio from this Third Thursdays Webinar, our expert panel made up of people living with Parkinson’s disease (PD), a movement disorder specialist and a research…

1
Breathing Through: Mindfulness as a Parkinson's Treatment Tool 45:21

3M ago45:21

45:21

Research shows mindfulness and meditation can improve some Parkinson’s (PD) symptoms and help people live a better life with the disease, but it can be tricky to put into practice. In this podcast, you’ll hear from people whose lives have been touched by PD and who use mindfulness to reduce symptoms and stress, and from a researcher who is studying…

1
Considering Deep Brain Stimulation: What to Know and Expect (Webinar Audio) 56:47

4M ago56:47

56:47

The decision-making process around deep brain stimulation (DBS) to treat Parkinson’s motor symptoms can be a complex and emotional journey. People often have questions about when – and whether – to have the procedure and what the experience is like, from the months of evaluation pre-surgery to surgery day to life with the device. In audio from this…

1
Building on the Biomarker Breakthrough: What We’re Working on Now 34:58

4M ago34:58

34:58

Just over a year ago, there was a major breakthrough in Parkinson’s disease (PD) research – a tool that could detect abnormal alpha-synuclein protein in the spinal fluid of people living with PD even before onset of symptoms. This discovery is already impacting the ways scientists conduct and think about Parkinson’s research. Tune into this episode…

1
You Want to Volunteer for Parkinson’s Research: Now What? (Webinar Audio) 58:31

5M ago58:31

58:31

You might be interested in stepping forward for science to play a role in the next breakthrough in Parkinson’s research, but still have questions about how to actually participate. How do you pick the right study for you? How do you balance your life logistics and your medical care considerations? What rights do you have when you participate in a s…

1
When Parkinson’s Hurts: Treatments for Managing Pain (Webinar Audio) 57:53

6M ago57:53

57:53

Many people living with Parkinson’s disease (PD) experience pain as a non-motor symptom. Pain can arise from stiff muscles, dystonia, nerve pain and even the disease progression itself. It’s a symptom that some find difficult to talk about, but there are options for people to find relief. In audio from this Third Thursdays webinar, listen to our ex…

1
What I Wish I Had Known at Diagnosis 36:49

6M ago36:49

36:49

In this episode, hosted by Larry and Rebecca Gifford, members of The Michael J. Fox Foundation’s Patient Council and their care partners share their honest reactions to their diagnosis — from panic and denial to sadness and loneliness. This group of men and women of different ages and backgrounds offers words of wisdom about what to consider, what …

1
Real Talk from Women Living with Parkinson’s 44:21

6M ago44:21

44:21

In this raw and emotional conversation, four women with Parkinson’s living in four different countries discuss the challenges faced because of delayed diagnosis, hormonal changes, lack of information and treatment, research inequity and gender biases. They share how they live better with the disease by advocating for themselves with their health ca…

1
Season 4 Episode 5 Rock climbing, a vision to end Parkinson’s disease and the Today Show! 40:16

7M ago40:16

40:16

Join me as I speak with a panel of guests today including Molly Cupka, the Director of Sportrock Climbing Center, Alexandria and Founder of Up Ending Parkinsons. Molly is determined to spread the addictive sport that is rock climbing throughout the Parkinsons community. In addition, Molly is also dedicated to funding research and sharing simple, ev…

1
Let’s Talk Taboos: Hard-To-Discuss Parkinson’s Symptoms (Webinar Audio) 51:46

7M ago51:46

51:46

Living with Parkinson’s comes with a variety of symptoms, some of which can be unexpected, and frankly, embarrassing. Drooling, bladder issues and sexual dysfunction are hard to talk about, even with loved ones or your doctor – and can affect your self-image, your intimate relationships or the way you move through the world. In audio from this Thir…

1
Everyday Exposures to Parkinson’s: Environmental Connections to the Disease (Webinar Audio) 59:07

8M ago59:07

59:07

The biology behind what causes Parkinson’s is complex, with only about a quarter of cases with clear genetic drivers. The environment – where you live, the air you breathe, the food you eat, the world around you – plays a key role in PD. Emerging research is showing environmental exposures to things like pesticides and pollution may interact with a…

1
Therapies for Tomorrow: How Better Clinical Trial Design Leads to Better Treatments (Webinar Audio) 58:58

9M ago58:58

58:58

The drug development pipeline is key to bringing new therapies to people with Parkinson’s disease (PD). With major breakthroughs in research in the past year, including a new biomarker for PD, The Michael J. Fox Foundation’s Parkinson’s Progression Markers Initiative (PPMI) study and other initiatives can be leveraged to create better designed tria…

1
Season 4 Episode 4 Dr. Sara Whittingham 37:49

9M ago37:49

37:49

What do Parkinson’s disease and an Ironman Triathlon have in common…Dr. Sara Whittingham Dr. Sara Whittingham is an Air Force Veteran and Anesthesiologist at Cleveland Clinic, Marymount Hospital, and clinical faculty member at Northeast Ohio Medical University. She traveled the world caring for fellow service members and patients. In Nov. 2020, at …

1
Season 4 Episode 2: Tim Hague runs the race of his life-winner of season #1 of The Amazing Race Canada 43:47

9M ago43:47

43:47

Time Hague runs the race of his life. Tim Hague Sr. overcame the odds when he went from a diagnosis of Parkinson’s disease to winning season #1 of The Amazing Race Canada. Listen in as he shares the lessons he learned from that experience. His message is wrapped in the idea of having the strength to do your best, the courage to be content with what…

1
Season 4 Episode 3: Billy Kennedy, American basketball coach, discusses living with Parkinson's disease while in the public eye 16:54

9M ago16:54

16:54

Billy Kennedy is an American basketball coach who has a winning career spanning almost three decades. He talks candidly about his diagnosis during a career change, DBS surgery and his approach to living with Parkinson’s disease.De către Teresa Jackson

1
Dating and New Relationships after a Parkinson’s Diagnosis 33:52

9M ago33:52

33:52

Dating and beginning new relationships with Parkinson’s involve distinct challenges, joys and fears. In this frank and funny podcast, our experts discuss how they face considerations like building and maintaining confidence, disease disclosure, and the importance of self-knowledge and self-care in new relationships. They remind us all that no matte…

1
Season 4 Episode 1: Up Ending Parkinson's disease with Molly Cupka 34:30

10M ago34:30

34:30

Have you heard that exercise may slow the progression of Parkinson’s Disease? Are you curious which types of exercise may help? Please join me as I chat with Molly Cupka, Director of Sportrock Climbing Center in Alexandria, Virginia and Founder and President of Up Ending Parkinson’s. In addition, two special guests, Teresa Bennett and Michelle Sloa…

1
New Year, New Moves! Explore Exercise for Life with Parkinson’s (Webinar Audio) 59:14

10M ago59:14

59:14

We know exercise is important for people with Parkinson’s. Once you’ve decided to move more, what next? In this audio from our Third Thursdays Webinar, our experts discuss strategies for making exercise a meaningful part of your life. They present ways to make time for exercise and to make the most of it, including being aware of different types, f…

1
How MJFF “De-Risks” PD Drug Development Pipeline 33:09

10M ago33:09

33:09

One key pillar of The Michael J. Fox Foundation’s research strategy is a focus on “de-risking" potential treatments for Parkinson’s disease. This episode of our award-winning “Parkinson’s Science POV” series explains how lowering the risk associated with developing new therapies leads to a more robust pipeline of treatments. The episode details sev…

1
Tools for Diagnosing and Visualizing Parkinson’s Disease (Webinar Audio) 55:37

11M ago55:37

55:37

Doctors have been using DaTscan brain imaging as a tool to help diagnose the Parkinson’s disease (PD) for more than a decade, but even people who know a lot about the disease often still have questions about its role — and the role of other imaging tools — in diagnosis and care. What’s a DaTscan, and how does it relate to PET, SPECT and MRI? When i…

1
Having Happy Holidays with Parkinson’s 37:24

11M ago37:24

37:24

The holidays can be a time of joyful celebration with those we love. They may also come with the stress of travel, disruptions to your regular routine or even loneliness. For those living with Parkinson’s disease (PD), or those taking care of someone they love with the disease, these feelings can be intensified. This podcast offers tips to people l…

1
A Year Like No Other in Parkinson’s Research: 2023 in Review (Webinar Audio) 57:24

12M ago57:24

57:24

In a year of remarkable progress for the Parkinson’s field, we’re entering a new era for better understanding the biology of the disease, with the identification of a breakthrough biomarker accelerating new therapeutics through the clinical pipeline and legislators on Capitol Hill moving toward legislation that unites the federal government on a mi…

1
Genetics Discovery Underscores Importance of Diversity in Parkinson’s Disease Research 43:20

1y ago43:20

43:20

In a groundbreaking discovery earlier this year, a global consortium found a new variant in the GBA gene that is associated with a higher risk of Parkinson’s disease (PD) for people of African ancestry. The finding marks the first African ancestry-specific genetic risk factor for Parkinson’s disease. In this podcast, researchers share the human sto…

1
Ask Us Anything: Answers to Your Questions about Gut Health and Parkinson’s (Webinar Audio) 59:38

1y ago59:38

59:38

People with Parkinson’s disease (PD) have lots of questions about probiotics, prebiotics, laxatives and fiber. That’s because constipation and bloating are some of the more bothersome but less talked about symptoms of PD. In this audio from our Third Thursdays Webinar, experts and people with PD discuss effective ways for managing constipation and …

1
Finding Your Way: Working through Emotions in Early Years with Parkinson’s (Webinar Replay) 58:46

1y ago58:46

58:46

Shock, doubt, anxiety — a diagnosis of Parkinson’s can trigger these and many other difficult emotions. This replay of audio from our Third Thursdays Webinar features a conversation among people with Parkinson’s about how they processed the emotional aftermath and navigated the early years following their diagnosis. We also hear from a psychologist…

1
Too Much or Not Enough: Dyskinesia and “Off” Time in Parkinson's (Webinar Replay) 58:44

1y ago58:44

58:44

In this replay of audio from our Third Thursdays Webinar, Michael J. Fox Foundation Patient Council member Larry Gifford leads a discussion on common Parkinson’s issues — dyskinesia and "off" time — and how to treat them. Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0…

1
Season 3 Episode 5 Dr. Michael Okun discusses fatigue, sleep and other non motor Parkinson’s symptoms. 28:03

1y ago28:03

28:03

Are you challenged with non motor Parkinson's symptoms? Do you experience fatigue and sleep disruptions? Dr. Michael Okun discusses the management of these symptoms and more. Please join me as I speak with world Parkinson’s leader, Dr. Michael Okun. Dr. Okun is a board-certified neurologist, movement disorders specialist, neuroscientist and author …

1
Reporting on Stem Cells for Parkinson’s 38:42

1+ y ago38:42

38:42

Stem cells have grabbed headlines for decades. Now, at last, they are starting to deliver on their therapeutic promise, with multiple stem cell therapies in clinical trials for Parkinson’s disease. This episode of our award-winning “Parkinson’s Science POV” series brings us up to date on these trials, including how scientists are using stem cells t…

1
Genetics and Parkinson’s: Understanding the Role of Gene Therapy in a Cure (Webinar Audio) 59:55

1+ y ago59:55

59:55

What do you know about gene therapy and its potential for treating Parkinson’s? In this audio from our Third Thursdays Webinar, you’ll learn what exactly gene therapy is and how it works, who gene therapy might work for and the role of genetic testing. You’ll also get a status report on investigations into gene therapy for Parkinson’s. Panelists in…

1
Season 3 Episode 4: When both of your parents are diagnosed with Parkinson's disease. A candid discussion with Laura Mosley-Manthey on her parent's journey with Parkinson's and the impact it has had on ... 31:33

1+ y ago31:33

31:33

Do you have a parent living with Parkinson’s? Can you imagine what it would be like to have both parents with Parkinson’s? Please join me as I chat with Laura Mosley – Manthey, as she candidly shares her parent’s journey with Parkinson’s and the impact it has had on her life. Laura inspires those around her with her strong faith and her selfless gi…

1
Digestible Tips: Your Gut and Parkinson’s 49:55

1+ y ago49:55

49:55

How’s this for a dinnertime conversation starter… did you know that what happens in your gut can have an impact on your brain health? Some experts even call the gut “the second brain” because of its huge community of microbes and large nerve network that links the gut to brain disease, like Parkinson’s. Join our panel of experts who cover the lates…

1
From Low Blood Pressure to Bladder Problems: A Look at Lesser-Known Parkinson’s Symptoms (Webinar Replay) 1:00:53

1+ y ago1:00:53

1:00:53

Many people with Parkinson’s experience autonomic symptoms, like bladder problems, low blood pressure and constipation that can be hard to talk about. In this audio from our Third Thursdays Webinar replay, experts and patients open a dialogue on these issues and share ways to treat them. Like our podcasts? Please consider leaving a rating or review…

1
Ask MJFF Anything: Your Questions for Our Scientists 49:03

1+ y ago49:03

49:03

In the latest installment of our award-winning “Parkinson’s Science POV” series, MJFF’s Maggie Kuhl sits down with Mark Frasier and Brian Fiske, Chief Science Officers at MJFF, in an “Ask MJFF Anything” edition of our podcast. These experts cover a variety of questions from our community about Parkinson’s disease (PD) therapies and treatments, the …

1
Get Moving: Exercising for a Healthy Brain (Webinar Audio) 1:01:23

1+ y ago1:01:23

1:01:23

Have you ever wondered what’s the best exercise for your brain? Listen as our expert panel breaks down approachable tips to add more movement into your day-to-day, Parkinson’s-friendly exercises to try right now and the science behind the benefits of working up a sweat. Join hundreds of Parkinson’s community members June 17 weekend for our annual V…

1
If Not Us, Who? Humans behind a Biomarker Breakthrough 32:04

1+ y ago32:04

32:04

Faith and science are not often discussed together, but science requires a leap of faith. A few years ago, MJFF staff scientists, Samantha Hutten, PhD and Katie Kopil, PhD never would have guessed that a leap of faith and a cold call to a researcher in Texas would lead to a tool that, for the first time, can detect Parkinson’s in people who have no…

1
Season 3 Episode 3: Carley Rusch, PhD, RDN, LDN, nutrition and the impact it has on Parkinson's symptoms 45:27

1+ y ago45:27

45:27

Are you curious how nutrition affects Parkinson’s Disease? Is there a Parkinson’s specific diet? What about microbiome? Please join me as I talk with Carley Rusch PhD, RDN, LDN as she discusses how nutrition impacts Parkinson’s symptoms. Carley coordinated a nutrition program at the UF Health Norman Fixel Institute for Neurological Diseases and her…

1
Major Research Breakthrough: A New Biomarker for Parkinson's (Webinar Audio) 59:29

1+ y ago59:29

59:29

In April, The Michael J. Fox Foundation (MJFF) announced a major biomarker breakthrough, opening a new chapter for Parkinson’s research — with the promise of better drug development and care for all people and families living with the disease. With the new test, validated by MJFF’s Parkinson’s Progression Markers Initiative (PPMI), researchers can …

1
Trouble Sleeping? What to Know about Acting Out Dreams and Other Sleep Issues (Webinar Replay) 51:46

1+ y ago51:46

51:46

Some people act out their dreams while asleep. They may punch, kick, yell or even fall out of bed. This sleep problem can be linked to Parkinson’s and other brain diseases. In this episode, experts share why sleep issues happen and what you can do to manage them. If you or your bed partner have sleep issues — whether you have Parkinson’s or not — y…

1
Season 3, Episode 2: Dr Michael Okun, world Parkinson's leader and how to best manage Parkinson's disease 37:11

1+ y ago37:11

37:11

Please join me as I speak with world Parkinson’s leader, Dr. Michael Okun. Dr. Okun is a board-certified neurologist, movement disorders specialist, neuroscientist and author who practices with the philosophy that ‘the patient is the sun’ and should be at the center of all care decisions. Dr. Okun co-founded and co-directs the internationally renow…

1
What You Need to Know about Sleep, Aging and Parkinson's 41:11

1+ y ago41:11

41:11

Did you know that RBD – REM sleep behavior disorder, or acting out dreams -- can be an early indicator of Parkinson’s? Many people develop sleep issues as they age — with and without PD. Join host Larry Gifford in a rich discussion with expert Stephen Joza, MD, PhD; Allen Dance, recently diagnosed with RBD; and Richie Rothenberg, patient advisor to…

1
One Step at a Time: Managing Gait and Balance Issues in Parkinson's (Webinar Audio) 58:03

1+ y ago58:03

58:03

From freezing to shuffling and everything in between, gait and balance issues can impact people with Parkinson’s at all stages of their journey. In this episode, listen as experts discuss emerging research and tips for people and care partners to improve mobility, prevent falls and maintain independence day to day. The Michael J. Fox Foundation’s l…

1
Food for Thought: Answering Your Questions on Diet, Brain Health and Parkinson's 1:02:29

2y ago1:02:29

1:02:29

For many, the word “diet” has negative associations: cutting out the foods you love, not enjoying what you eat or following strict rules about what you can or can’t eat. But diet is a way of life. And you can still boost brain health or manage Parkinson’s with your favorite family recipes, dinner out with friends and even the salty or sweet snacks …

1
Eating to Boost Brain Health and Ease Symptoms (Webinar Audio) 1:02:17

2y ago1:02:17

1:02:17

What foods are best for you? Whether you have Parkinson’s disease, or are concerned you might develop it, food and nutrition play a critical role in brain health. Our expert panel of Parkinson’s physicians and nutritionists shares effective ways to manage symptoms through nutrition and mobility modifications to make food preparation and eating easi…

1
Season 3 Episode 1, Jon Braddock, His diagnosis with YOPD and coping with the disease during the best years of his life 32:37

2y ago32:37

32:37

Season 3 Episode 1: Jon Braddock is a licensed architect with a Masters Degree from MIT and a Bachelors Degree from the University of Florida. He was diagnosed with YOPD in Jan, 2020 and lives in Ponte Vedra, Florida with his wife and two kids. Join me as I talk to Jon about navigating Young Onset Parkinson’s Disease and coping with the disease dur…

1
Podcast: What Comes Next? Living with Parkinson’s Years after Diagnosis (Webinar Replay) 1:00:23

2y ago1:00:23

1:00:23

There are social, emotional and physical changes you may notice after living with Parkinson’s for some time. In this episode replay, experts discuss tips for managing symptoms, finding support and living well with Parkinson’s disease. Our landmark Parkinson’s Progression Markers Initiative is open to anyone over age 18 in the U.S. Join the study th…

1
Navegando el Viaje Emocional de un Diagnóstico de Parkinson (seminario virtual: grabación de audio) 57:14

2y ago57:14

57:14

Un diagnóstico de Parkinson puede traer muchas emociones diferentes: negación, ira, tristeza, frustración. Es importante saber que no importa qué emociones sientas, no estás solo. Escuche a los expertos, personas con Parkinson y un especialista en trastornos del movimiento, hablar sobre cómo navegar por las emociones y el viaje viviendo con la enfe…

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