Neurofibromatosis Advocacy and Community Building with the Gilbert Family Foundation

Brain & Life

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In this week’s episode, Brain & Life Podcast co-host Dr. Katy Peters discusses the Gilbert Family Foundation’s work on neurofibromatosis (NF) with their executive director, Laura Grannemann. She shares about ways they connect with the NF community, ongoing research the foundation is leading, and how anyone can get involved in advocacy work. Dr. Peters then speaks with neurologist and Director of The Johns Hopkins Comprehensive Neurofibromatosis Center, Dr. Jaishri Blakeley, about what exactly neurofibromatosis is, how it affects patients, and treatment options for all ages.

Additional Resources

The Gilbert Family Foundation

What is Neurofibromatosis?

New Research Offers More Options to People with Neurofibromatosis Type 1

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Social Media:

Guests: Laura Grannemann @gilbertfamilyfoundation; Dr. Jaishri Blakeley @hopkinsmedicine

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

142 episoade

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