Rare Disease Ph.D. Beth Vanstone and Laura Bonnell

Living With Cystic Fibrosis

Content provided by The Bonnell Foundation and Laura Bonnell. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by The Bonnell Foundation and Laura Bonnell or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ro.player.fm/legal.

1M ago 27:39

MP3•Pagina episodului

Are titles important? As a rare disease parent, we think you're worthy of a Ph.D. Listen to our fun conversation about all things rare and the much needed title we may need (or not) to get things done.

As a reminder, Beth Vanstone is the mother of two daughters, one who has CF. Madi is 23 years old. Beth is a huge advocate in Canada, and much of the progress made in the rare disease space is thanks to her efforts.

Laura Bonnell and Beth Vanstone have been advocating a total of more than 50 years combined, and they're not done yet. They need your help, on any scale that works for you (small or large).

Please like, subscribe, and comment on our podcasts!

Please consider making a donation: https://thebonnellfoundation.org/donate/

The Bonnell Foundation website:https://thebonnellfoundation.org

Email us at: thebonnellfoundation@gmail.com

Thanks to our sponsors:

Vertex: https://www.vrtx.com

Viatris: https://www.viatris.com/en

145 episoade