Ehlers Danlos Syndrome in the age of COVID
Manage episode 431408488 series 3560715
Squeeze a world of passion, goal driven problem solver and an adventurous triathlete into 5
feet of fun and you get Faith Louise Cooper.
Faith Louise grew up in a family of 5 with 2 younger sisters. At the 12 she was diagnosed with Juvenile Rheumatoid Arthritis, now known as Juvenile Idiopathic Arthritis. In 2017 she was diagnosed with hypermobility syndrome and was recently changed to Hypermobility Ehlers Danlos Syndrome abbreviated as hEDS. Her younger sister also battles with hEDS on a daily basis.
Faith Louise joined the swim team in middle school to help manage the arthritis. She lives an enriching life and despite what the medical research says she has gone from being in excreting pain when standing for 15 mins to completing a half Ironman a few years back. Faith Louise has great joy and strength in life because of challenges she has faced.
Faith Louise, wanting to have all the tools in her tool box to live an enriching life has decided to study nutrition and is completing her certified holistic nutrition. She has passion for equipping, educating and inspiring other families going through the same thing as well as raising awareness.
In this episode she discusses the difficulties during COVID with hEDS.
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