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Pulling Back the Curtain on ALS with Brooke Eby
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My guest for this episode of Shift Out Loud was diagnosed with amyotrophic lateral sclerosis (ALS) when she was just 33 years old. Since then, Brooke Eby has become a passionate and vocal advocate and fundraiser who is raising awareness of ALS through her humor and honesty.
During our thoughtful conversation, Brooke shares how her diagnosis has changed her life and why she’s chosen to share her story through interviews, speaking appearances, and on social media. You’ll learn how she’s working to educate the public about ALS — and how her amazing support system has enabled her to embrace her advocacy and continue to live vibrantly.
After you’ve listened to the episode, follow Brooke on TikTok and Instagram, and visit ALS.org to learn what you can do to help find a cure for this progressive disease.
Listen now to discover:
How Brooke and her family have adapted to her diagnosis
- The wheelchair airline incident that gained nearly 12k likes on TikTok — and how the airline is fixing their mistake
- What you should know (but likely don’t) about ALS and its impact
Brooke Eby was diagnosed with ALS, a terminal, debilitating disease with no cure, at the age of 33 after four years of confusing symptoms. She’s spent the last year sharing her story through outlets like The Today Show, as well as on social media with her over 280k followers. She’s fundraised over $1 million for ALS research. With the support of her friends and family, she’s been able to laugh in the face of ALS.
Timestamps:
01:57 Intro
02:45 Meet Brooke Eby
04:31 Studying tech
07:25 Symptoms & progress
11:00 Learning her diagnosis
14:05 Adjusting to the diagnosis
16:39 Having a support system
19:06 Rolling with denial
21:21 How ALS works
25:45 The airline wheelchair incident
28:48 Shift to living at home
30:50 Interacting on social media
33:00 Fight for the cure
35:16 Bucket list & advocacy work
37:08 Physical therapy
38:38 What you should know about ALS
40:13 What’s next
43:45 Follow Brooke
47:27 Celebrity connections & authorship
49:08 Cat story
50:59 Conclusion
Links:
Brooke Eby
youtube.com/@limpbroozkit
TikTok: @limpbroozkit
Twitter/X: @limpbroozkit
Instagram: @limpbroozkit
ALS.org
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