))
Patient Advocacy Tips from the Hypersomnia Foundation, featuring Claire Wylds-Wright.
Manage episode 380161966 series 3469332
Content provided by Alison Kole. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Alison Kole or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ro.player.fm/legal.
Claire Wylds-Wright is the CEO of the Hypersomnia Foundation, and the author of Waking Mathilda, a memoir about her journey to California in search of an answer for her daughter's sleepiness. Her daughter Mathilda is one of the youngest patients to be diagnosed with narcolepsy in documented history. Claire is an inspiration. Her organization is doing phenomenal work both in promoting research for conditions of hypersomnia to improve treatment and if possible a cure for debilitating sleepiness, as well as acting as a hub of information for patients and their families. It is an honor to chat with her and I guarantee you this episode will inspire you.
60 episoade
Distribuie
