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Episode 24: Empowering Families through Genomics and Blockchain with Daniel Uribe
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In this episode of the DNA of Things podcast, Dr. Jeremy speaks with Daniel Uribe, CEO and co-founder of Genobank.io, to discuss how blockchain technology is revolutionizing genomics, with a focus on patient data ownership and privacy. Daniel shares the deeply personal story of his son’s struggle with a rare genetic condition, which inspired the creation of Genobank.io—a platform empowering families to securely manage and own their genetic data. They delve into the technicalities of Web 3.0, the concept of bio NFTs, and how these innovations are shaping the future of personalized healthcare. The conversation also covers the integration of health records, the importance of comprehensive health data, and the evolving landscape of medical records and technology. Daniel highlights the impact on rare disease communities and outlines the challenges and opportunities in genomic data management, providing insights into current projects and future goals in this transformative field.
Episode Highlights:
- The role of blockchain technology in revolutionizing genomics.
- Patient data ownership and privacy through Genobank.io.
- Daniel Uribe's personal journey, inspired by his son's rare genetic condition.
- Introduction to bio NFTs and their potential in healthcare.
- Integration of health records and the future of personalized healthcare.
- The evolution of the internet from Web 1 to Web 3 and its implications for data management.
- Decentralization, personal data vaults, and tokenization.
- Challenges and opportunities in genomic data management for rare disease communities.
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