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Episode 8: Celebrating Rare - The GRIN2B Podcast Episode 7 - Looking Forward to 2022 with Liz Marfia-Ash

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Content provided by The GRIN2B Foundation. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by The GRIN2B Foundation or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ro.player.fm/legal.

Celebrating Rare - The GRIN2B Podcast closes out 2021 by welcoming GRIN2B Foundation President and founder Liz Marfia-Ash. Liz reflects on the year that was while also previewing three exciting initiatives GRIN2B Foundation is taking on in 2022, including a potential clinical trial for patients with gain of function GRIN2B variants, the opening of the first GRI Center of Excellence in Denver, Colorado and previewing our first in-person family weekend since 2018.
PODCAST Disclaimer: While I make every effort to broadcast correct information, I am still learning. I make every effort to double check my facts, but realize that medicine is a constantly changing science and art. I am simply sharing my views and personal experiences as a GRIN2B parent. I am not a medical professional. I welcome any comments, suggestions, or correction of errors. This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Phillip Ash, The GRIN2B Foundation, any guests or contributors to the podcast, or any employees, associates, or affiliates of The GRIN2B Foundation be responsible for damages arising from use of the podcast.

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9 episoade

Artwork
iconDistribuie
 
Manage episode 372167580 series 3496394
Content provided by The GRIN2B Foundation. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by The GRIN2B Foundation or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ro.player.fm/legal.

Celebrating Rare - The GRIN2B Podcast closes out 2021 by welcoming GRIN2B Foundation President and founder Liz Marfia-Ash. Liz reflects on the year that was while also previewing three exciting initiatives GRIN2B Foundation is taking on in 2022, including a potential clinical trial for patients with gain of function GRIN2B variants, the opening of the first GRI Center of Excellence in Denver, Colorado and previewing our first in-person family weekend since 2018.
PODCAST Disclaimer: While I make every effort to broadcast correct information, I am still learning. I make every effort to double check my facts, but realize that medicine is a constantly changing science and art. I am simply sharing my views and personal experiences as a GRIN2B parent. I am not a medical professional. I welcome any comments, suggestions, or correction of errors. This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Phillip Ash, The GRIN2B Foundation, any guests or contributors to the podcast, or any employees, associates, or affiliates of The GRIN2B Foundation be responsible for damages arising from use of the podcast.

  continue reading

9 episoade

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