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Exciting Rare Disease Developments in the EU, feat. HAE Junior
Manage episode 321501454 series 2655724
Content provided by Patient Worthy. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Patient Worthy or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ro.player.fm/legal.
Hello and Happy Rare Disease Day! This week, we discuss some exciting developments concerning rare disease awareness in the EU, specifically in the Czech Republic, with Camelia Isaic and Anežka Dašková of HAE Junior. To learn more about HAE Junior, click here. More information about HAE Junior art exhibition can be found here. Read more about the EU Council Presidency's focus on rare disease for 2022-2022 here. And keep up with Anežka's YouTube Channel here.
73 episoade
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Manage episode 321501454 series 2655724
Content provided by Patient Worthy. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Patient Worthy or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ro.player.fm/legal.
Hello and Happy Rare Disease Day! This week, we discuss some exciting developments concerning rare disease awareness in the EU, specifically in the Czech Republic, with Camelia Isaic and Anežka Dašková of HAE Junior. To learn more about HAE Junior, click here. More information about HAE Junior art exhibition can be found here. Read more about the EU Council Presidency's focus on rare disease for 2022-2022 here. And keep up with Anežka's YouTube Channel here.
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Similar cu Wait, How Do You Spell That? A Rare Disease Podcast
Brilliant solutions to the world’s problems. We meet people with ideas to make the world a better place and investigate whether they work.
…
continue reading
I Tyngre Radio snackas det om styrketräning. Punkt. Värdar är Alex Danielsson och Andreas Guiance.
…
continue reading
Move more of your body more often and in more interesting ways with the Get-Fit Guy! If you want to begin an exercise routine and don't know where to start, or if you've been working out for a while and aren't getting the results you want, Kevin Don will give you the tips you need to reach your fitness and movement goals. Get expert information on the latest fitness trends and advice on everything from toning your arms to running a 5K or simply building more movement into your day. With his ...
…
continue reading
A top podcast for healthcare leaders, with over one million downloads, Radio Advisory is your weekly download on how to untangle the industry's most pressing challenges to help leaders like you make the best business decisions for your organization. From unpacking major trends in care delivery—like site-of-care shifts and the rise of high-cost drugs—to demystifying stakeholder dynamics, to shining a spotlight on priorities that may get overlooked, we're here to help. Our hosts and seasoned r ...
…
continue reading
Starting Strength is the bestselling book on the most fundamental and effective approach to strength training ever written. Mark Rippetoe hosts Starting Strength Radio where he discusses topics of interest, primarily to him, but perhaps also to you.
…
continue reading
PT Inquest is an online journal club. Hosted by Jason Tuori, Megan Graham, and Chris Juneau, the show looks at an article every week and discusses how it applies to current physical therapy practice.
…
continue reading
Most of us have gotten at least a little emotional at some point recently. It’s natural. But why do we have emotions and how much should we pay attention to them on any given day? Can we learn to skillfully choose which emotions to listen to and which ones to just let move on by? In More Than A Feeling, the latest podcast from Ten Percent Happier, host Saleem Reshamwala goes on a real life quest to find the answers to these questions. He’ll experiment with neuroscientists, dive into stories ...
…
continue reading
New episode every Wednesday! Join the Barbell Shrugged crew in conversations about fitness, training, and frequent interviews w/ CrossFit Games athletes!
…
continue reading
Series that demystifies health issues, separating fact from fiction and bringing clarity to conflicting health advice.
…
continue reading
Dr. Drew Pinsky, board certified internist and addiction medicine specialist, takes listener calls and talks to experts on a variety of topics relating to health, relationships, sex and drug addiction.
…
continue reading
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