Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Katie Jackson each week for incredible programming and don’t forget to ...
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Champions for HD is a nonprofit that fights to aid families and cure Huntington's Disease one family and one voice at a time. Our vision is to fight HD by contributing funds to local research while aiding HD families in need. This podcast will bring you stories from champions within the HD community as well as updates from the professionals in the field. This is a safe place to share freely and support one another. No one fights Huntington's Disease alone.
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Interview series with the people working in Huntington's disease research and treatments
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I pick a topic I want to know more about and dig into it for a year. 2017 is all about space! I'll look at anything that sends me down a research tangent. I do take requests, I don't keep it formal, I do my research, I don't like describing complex math but I do try. Wander with me into the cat’s-cradle tangle of society, history, science, and anything I thought was cool to mention.
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ESOcast is a video podcast series dedicated to bringing you the latest news and research from ESO, the European Southern Observatory. Here we explore the Universe's ultimate frontier.
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The Prospect Group is a leading global firm specializing in media, research, and consulting. We meet, and discuss the most relevant economic issues with, hundreds of the world’s leading business executives, political elites, and other influential personalities from a cross-section of industries and countries. Watch video interviews from around the world.
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The Prospect Group is a leading global firm specializing in media, research, and consulting. We meet, and discuss the most relevant economic issues with, hundreds of the world’s leading business executives, political elites, and other influential personalities from a cross-section of industries and countries. Watch video interviews from and/or about Malaysia.
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The Prospect Group is a leading global firm specializing in media, research, and consulting. We meet, and discuss the most relevant economic issues with, hundreds of the world’s leading business executives, political elites, and other influential personalities from a cross-section of industries and countries. Watch video interviews from and/or about Thailand.
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The Prospect Group is a leading global firm specializing in media, research, and consulting. We meet, and discuss the most relevant economic issues with, hundreds of the world’s leading business executives, political elites, and other influential personalities from a cross-section of industries and countries. Watch video interviews from and/or about the United Arab Emirates (UAE).
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Photoswitches: A New Addition to the Molecular Toolkit – HD
Ludwig-Maximilians-Universität München
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Here, thunder::tech will share with you videos of integrated marketing splendor.
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The Hamilton Institute is a multi-disciplinary research centre established at the National University of Ireland, Maynooth in November 2001. The Institute seeks to provide a bridge between mathematics and its applications in ICT and biology. In this podcast feed, we make accessible some of the best seminars held by members of the Hamilton Institute, visitors or guest speakers. Futhermore, it will also contain the lectures give as part of the 'Network Mathematics Graduate Programme'.
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Prospect HD - Economies in Motion. The Prospect Group is a leading global firm specializing in media, research, and consulting. We meet, and discuss the most relevant economic issues with, hundreds of the world’s leading business executives, political elites, and other influential personalities from a cross-section of industries and countries. Watch profiles of various sectors from around the world.
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Metamask Wallet Clone Script is the pre-made software that has the same functionalities similar to the original Metamask Wallet. Multi-currency assist, Two-factor verification, HD settings, and many more features are there. So, create your Wallet once and earn more profits. After much research, I prefer WeAlwin Technologies is one of the leading Wallet Development Company which offers services. They have delivered 150+ projects to clients beyond their expectations. Get a free demo. Reach the ...
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Metamask Wallet Clone Script is the pre-made software that has the same functionalities similar to the original Metamask Wallet. Multi-currency assist, Two-factor verification, HD settings, and many more features are there. So, create your Wallet once and earn more profits. After much research, I prefer WeAlwin Technologies is one of the leading Wallet Development Company which offers services. They have delivered 150+ projects to clients beyond their expectations. Get a free demo. Reach the ...
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Brought to you by the Huntington’s Outreach Project for Education at Stanford, the HOPES podcast shares stories that shed light on the history and current issues in Huntington’s Disease research.
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This series centres on a unique population of African leopards. The elusive cats are losing a battle with a powerful enemy: humans. Habitat destruction and persecution by farmers have pushed Cape mountain leopards to the brink … and their fate now rests in the hands of a dedicated wildlife conservationist. Quinton Martins knows that research is key when it comes to saving a species – but gathering data about these animals is not easy.
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The CAS lecture series „Cutting Edge“ addresses the various challenges that scholarship is facing today. Current political and economic changes, such as globalization, great discoveries like genome sequencing or the hypotheses of string theory are asking for scientific creativity. What can different disciplines offer to answer those challenges? What is the current state of research, what is cutting edge? | Die Vortragsreihe am Center for Advanced Studies fragt nach den aktuellsten Entwicklun ...
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End of Life: The Caregiver Perspective, Part 2
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End of Life: The Caregiver Perspective, Part 2De către Help4HD
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UF Fixel Institute for HD Patients with Dr. Nick McFarland
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For more information about the UF Fixel Institute located in Gainesville, FL, please click here.De către Help4HD
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HDYO Ambassador: MollyDe către Help4HD
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To read the blog post BJ Viau wrote, please click hereDe către Help4HD
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HDYO Ambassador GemmaDe către Help4HD
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HD Uncut: Being Gene-Positive & a Scientist
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"Bri" joins me to discuss what it's like being gene-positive for HD and a scientist doing HD research.De către Help4HD
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End of Life: The Caregiver Perspective
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End of Life: The Caregiver PerspectiveDe către Help4HD
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We are Stronger TogetherDe către Help4HD
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HDYO Ambassadors Series: Carly
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Please contact Jenna Heilman if you're interested in learning more about the HDYO Ambassadors program.De către Help4HD
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HD Genetics & Clinical Trials with BJ Viau
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Please visit hdgenetics.com for more information.De către Help4HD
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HD Uncut with GinaDe către Help4HD
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HD Awareness Month Wrap-up with Judy Bradley
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As a way to wrap up HD Awareness Month, let's #LightItUp4HD on social media tomorrow! Share a video or photo of you with blue and/or purple glow sticks tomorrow. Make sure to use #LightItUp4HDandJHD and/or #2024LightItUp4HD. If you want, also share why you're lighting it up for HD/JHD.De către Help4HD
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Recap of my visit with UniQure for HD Awareness MonthDe către Help4HD
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Act for ALS (and HD) with Thom Hart
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Thom Hart is the Director of Outreach with the Critical Path Institute (C-Path), which is a nonprofit created by the FDA to "improve the drug development process. It operates as a neutral third party to enable scientists from the regulated industry and international regulatory agencies to work together with scientists from academia and patient grou…
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For more information about the HDYO Ambassadors program, please visit www.hdyo.org.De către Help4HD
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What I learned at the World Orphan Drug Congress
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I recently attended the World Orphan Drug Congress in Boston, MA. The audio for this episode is from my YouTube video that you can find here: Dying to LiveDe către Help4HD
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HD Uncut with Meredith Patterson
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Meredith Patterson is a performing artist, author, and producer whose family was impacted by Huntington's Disease. To learn more about her, please visit her website: https://meredithpatterson.com/ She also has a podcast called "Confessions of an Actress". This week on her podcast, she shared about Huntington's Disease as a way to raise awareness. Y…
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Record-breaking stellar black hole found nearby | ESO News
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De către European Southern Observatory
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Using Optical Tweezers in HD with Dr. Piere Rodriguez-Aliaga
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Piere Rodriguez-Aliaga, PhD, is a young investigator whose current HD research is funded by the Hereditary Disease Foundation. He is using a new Nobel Prize-winning technology called Optical Tweezers to study one huntingtin molecule at a time, which allows access to structural information about pathogenic and non-pathogenic huntingtin variants with…
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Clash of stars solves stellar mystery | ESO News
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De către European Southern Observatory
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Cognitive Symptoms & Patient-Reported Outcomes with Dr. Jennifer Petrillo Billet
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Jennifer Petrillo Billet PhD is an Executive Director and Program Lead for investigational dalzanemdor, or SAGE-718, at Sage Therapeutics. She is responsible for driving the global development strategy, including delivery of the right evidence for key stakeholders including regulators, payers, and providers, and patients. Dalzanemdor is being evalu…
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HDYO Ambassador Series: Rhiannon
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Please visit www.hdyo.org for more informationDe către Help4HD
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A Raw Conversation About Living Gene Positive - with Charlotte Conn
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*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you. Follow Champions/External links: linktr.ee/championsforhd Website Follow Shelby: https://www.shelbylentz.com/ linktr.ee/shelby_lentz In their discussi…
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Please visit the Factor-H website for more information. Please also tune in to the Factor-H YouTube Channel on Saturday 3/23/2024 at 12 pm EST for HD Gratitude Day events in Venezuela.De către Help4HD
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Samantha and I got to participate in a focus group together. Here our thoughts about research and more!!De către Help4HD
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Survey reveals secrets of planet birth around dozens of stars | ESOcast Light
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1:29
De către European Southern Observatory
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HDYO Ambassadors Series: Ep 1. with Robyn
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HDYO Ambassadors Series: Ep 1. with RobynDe către Help4HD
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New link found between water and planet formation | ESOcast Light
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De către European Southern Observatory
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Metal scar found on cannibal star | ESOcast Light
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1:16
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Using ESO’s Very Large Telescope, astronomers have found a metal ‘scar’ imprinted on the surface of a dead star. This video summarises the discovery.De către European Southern Observatory
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HD Uncut, Ep. 12, with John Howard
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Happy 1st anniversary of the #HDUncut Series on #Help4HDLive! This show is exactly why I came up with the series in the first place. John Howard has Huntington's Disease. He's also a very talented poet. On this show, he shares some new poetry with the HD Community.De către Help4HD
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Astronomers identify record-breaking quasar | ESOcast Light
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Astronomers have characterised the most luminous quasar observed to date, which is powered by the fastest-growing black hole. This black hole is growing in mass by the equivalent of one Sun per day. The matter being pulled in toward this black hole forms a disc that measures seven light-years in diameter — about 15 000 times the distance from the S…
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Layers of Love with Dave, Susie and Erika
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Happy Valentine's Day! Join Erika Boulavsky from HD Reach and Lauren Holder from Help 4 HD in their conversations with Dave and Susie Hodgson about their Layers of Love. Dave and Susie's unique story talks about caring for both of their spouses with HD, how they found each other, and how they continue to support one another while caring for their k…
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Testing, Finding Support, and Mental Health with HD - With Jenna Woodard
1:08:30
1:08:30
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*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you. In this conversation, Jenna Woodard shares her experience with Huntington's disease (HD) in her family. She discusses her first memory of HD and how s…
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To follow Tanita Allen, please visit her website: https://tanitaallen.com/ Here is the link to purchase a copy of Tanita Allen's book: We ExistDe către Help4HD
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DNA Repair in HD with Dr. Joseph Hamilton
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Please visit the Hereditary Disease Foundation website to find out more information.De către Help4HD
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If you'd like to follow Charlotte on social media, please visit her website: https://linktr.ee/thehdhun Instagram handle - @thehdhun TikTok - Click HereDe către Help4HD
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HD Uncut, Ep. 11, with Dina De Sousa
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HD Uncut, Ep. 11, with Dina De SousaDe către Help4HD
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HD Charge with Dr. Jamie Hamilton
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Jamie L. Hamilton, PhD, is the Director of Clinical Outcome Assessments at CHDI. She led the HD Charge study, which focused on the indirect costs associated with being affected by Huntington's Disease.De către Help4HD
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Supernovae give rise to black holes or neutron stars (ESOcast 269 Light)
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Astronomers have found a direct link between the explosive deaths of massive stars and the formation of the most compact and enigmatic objects in the Universe — black holes and neutron stars. This video summarises the discovery.De către European Southern Observatory
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Greater than HD in 2024De către Help4HD
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HD Uncut, Ep. 10 with LeahDe către Help4HD
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Livable Lives with Christy Dearien
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If you'd like to follow Christy on social media, you can find her here: Facebook - www.facebook.com/ChristyDearien Instagram - @christydearienDe către Help4HD
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Welcome to Help 4 HD, Anna Lunsford!
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If you would like to send your resources and tips and tricks to Anna for our new database, please go to the Help 4 HD website - www.help4hd.org - go to Contact Us and submit. Anna is regularly checking submissions through the website. You can also send it directly to her email at anna@help4hd.orgDe către Help4HD
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Help 4 HD 2023 with Katie and Katrina
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For more information about all that Help 4 HD is doing, please visit the website - www.help4hd.orgDe către Help4HD
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Coping During the Holidays with Melissa W.
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Coping During the Holidays with Melissa W.De către Help4HD
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Episode 12: Talk to the Doc: How Can We Expand Access to HD Care? ft. Dr. Alexandra Duffy
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As an individual with Huntington's Disease, a family member, or a caregiver, have you ever struggled to access the medical care that you need? Huntington's Disease (HD) is a rare neurological disease that has a worldwide prevalence of 5-10 cases per 100,000 individuals. Those affected may sometimes experience long wait times or must travel thousand…
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Episode 11: The Importance of Advocacy
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What is HD advocacy? How can people get involved, and how do people who don’t have HD in their families, but still want to help, fit in? On this episode of the HOPES podcast, we speak to Max Moon, who is the volunteer director of advocacy at the Huntington’s Disease Society of America (HDSA), and Cole Holderman, who is a former co-leader of HOPES, …
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Episode 10: Ask an Attorney: Disability & HD
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Dealing with HD means having to jump through a lot of legal hoops to get the support that you need. Today on the HOPES Podcast, we feature special guest Allison Bartlett, Esq., a licensed disability attorney who currently serves as the manager of disability programs at the Huntington’s Disease Society for America (HDSA). Allison walks us through di…
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In this episode of the HOPES podcast, we meet Dawn, who took care of her partner of 35 years, Tom, throughout his life with HD. For caregivers, looking after a loved one with HD means facing the unfortunate realities of the disease, and looking for moments of connection in the worst of times. For some, it also means grieving your loved one before t…
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Lauren shares her feelings about the holidays and her recent birthday.De către Help4HD
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