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EP20: ME/CFS in Action: Transforming Chronic Illness Care

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Manage episode 415691497 series 3562912
Content provided by Institute for Neuro-Immune Medicine and Institute For Neuro-Immune Medicine. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Institute for Neuro-Immune Medicine and Institute For Neuro-Immune Medicine or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ro.player.fm/legal.

Watch Jaime Seltzer and other experts share their expertise at the INIM Conference 2024 on May 10, 2024.

Register here: https://www.nova.edu/nim/events.html

In this episode, Haylie Pomroy and Jaime Seltzer discuss the challenges faced by patients with myalgic encephalomyelitis (ME/CFS) and Post-COVID Syndrome (or Long COVID) in obtaining proper diagnosis and treatment due to the lack of understanding among medical providers.

Together, they emphasize the importance of patient-reported symptoms in diagnosing ME/CFS accurately and discuss efforts by Jaime’s organization, ME Action, to improve clinical care and education.

Don’t miss out on this episode as Jaime and Haylie explain the complexities of post-viral conditions like ME/CFS and Long Covid, including the relationship between viral damage, immune responses, and genetic factors. Explore the various sources of symptoms in these conditions and the need for personalized approaches to address them effectively.

Resources Mentioned:

Mayo Clinic Paper, “Diagnosis and Management of Myalgic

Encephalomyelitis/Chronic Fatigue Syndrome”:

https://www.mayoclinicproceedings.org/action/showPdf?pii=S0025-6196%2823%2900402-0

Pacing and Management Guides:

https://www.meaction.net/resource/pacing-and-management-guide/

Neuroinflammation Research Review (2019) by Jaime Seltzer:

http://www.meaction.net/wp-content/uploads/2019/06/19_MEA_Revised_2019_Research_Summary_190610.pdf

Subscribe to the MEAction Newsletter:

https://www.meaction.net/subscribe/

Donate to the MEAction Network:

meaction.net/donate

Jaime Seltzer is the Director of Scientific and Medical Outreach at ME Action, a nonprofit advocating for those with chronic illnesses. She bridges communication between healthcare, government, and research sectors, representing ME Action globally. Additionally, Jaime collaborates with institutions like Stanford Medicine and Mayo Clinic Rochester on post-infectious chronic diseases research. She brings personal insight to her work as someone living with ME/CFS.

LinkedIn: https://www.linkedin.com/in/jaime-seltzer-b23abb14/

Twitter: https://twitter.com/exceedhergrasp1

Website: https://www.meaction.net/

—------------------------------------------------------------------------------------------------

Thank you for tuning in to the Hope and Help For Fatigue and Chronic Illness Podcast. Sign up today for our newsletter.

👉 https://nova.us4.list-manage.com/subscribe?u=419072c88a85f355f15ab1257&id=5e03a4de7d

Enjoy our show? Please leave us a 5-star review so we can bring hope and help to others.

This podcast is brought to you by the Institute for Neuro-Immune Medicine. Learn more about us here.

Website: https://www.nova.edu/nim/

Facebook: https://www.facebook.com/InstituteForNeuroImmuneMedicine

Instagram: https://www.instagram.com/NSU_INIM/

Twitter: https://www.twitter.com/NSU_INIM

TikTok: https://www.tiktok.com/@nsu_inim

Your support goes a long way toward the advancement of clinical research. Donate here.

👉 https://www.nova.edu/nim/donations.html

#MECFS #POTS #Longcovid #SARS #MERS #chronicfatigue #MEActionNetwork

  continue reading

27 episoade

Artwork
iconDistribuie
 
Manage episode 415691497 series 3562912
Content provided by Institute for Neuro-Immune Medicine and Institute For Neuro-Immune Medicine. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Institute for Neuro-Immune Medicine and Institute For Neuro-Immune Medicine or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ro.player.fm/legal.

Watch Jaime Seltzer and other experts share their expertise at the INIM Conference 2024 on May 10, 2024.

Register here: https://www.nova.edu/nim/events.html

In this episode, Haylie Pomroy and Jaime Seltzer discuss the challenges faced by patients with myalgic encephalomyelitis (ME/CFS) and Post-COVID Syndrome (or Long COVID) in obtaining proper diagnosis and treatment due to the lack of understanding among medical providers.

Together, they emphasize the importance of patient-reported symptoms in diagnosing ME/CFS accurately and discuss efforts by Jaime’s organization, ME Action, to improve clinical care and education.

Don’t miss out on this episode as Jaime and Haylie explain the complexities of post-viral conditions like ME/CFS and Long Covid, including the relationship between viral damage, immune responses, and genetic factors. Explore the various sources of symptoms in these conditions and the need for personalized approaches to address them effectively.

Resources Mentioned:

Mayo Clinic Paper, “Diagnosis and Management of Myalgic

Encephalomyelitis/Chronic Fatigue Syndrome”:

https://www.mayoclinicproceedings.org/action/showPdf?pii=S0025-6196%2823%2900402-0

Pacing and Management Guides:

https://www.meaction.net/resource/pacing-and-management-guide/

Neuroinflammation Research Review (2019) by Jaime Seltzer:

http://www.meaction.net/wp-content/uploads/2019/06/19_MEA_Revised_2019_Research_Summary_190610.pdf

Subscribe to the MEAction Newsletter:

https://www.meaction.net/subscribe/

Donate to the MEAction Network:

meaction.net/donate

Jaime Seltzer is the Director of Scientific and Medical Outreach at ME Action, a nonprofit advocating for those with chronic illnesses. She bridges communication between healthcare, government, and research sectors, representing ME Action globally. Additionally, Jaime collaborates with institutions like Stanford Medicine and Mayo Clinic Rochester on post-infectious chronic diseases research. She brings personal insight to her work as someone living with ME/CFS.

LinkedIn: https://www.linkedin.com/in/jaime-seltzer-b23abb14/

Twitter: https://twitter.com/exceedhergrasp1

Website: https://www.meaction.net/

—------------------------------------------------------------------------------------------------

Thank you for tuning in to the Hope and Help For Fatigue and Chronic Illness Podcast. Sign up today for our newsletter.

👉 https://nova.us4.list-manage.com/subscribe?u=419072c88a85f355f15ab1257&id=5e03a4de7d

Enjoy our show? Please leave us a 5-star review so we can bring hope and help to others.

This podcast is brought to you by the Institute for Neuro-Immune Medicine. Learn more about us here.

Website: https://www.nova.edu/nim/

Facebook: https://www.facebook.com/InstituteForNeuroImmuneMedicine

Instagram: https://www.instagram.com/NSU_INIM/

Twitter: https://www.twitter.com/NSU_INIM

TikTok: https://www.tiktok.com/@nsu_inim

Your support goes a long way toward the advancement of clinical research. Donate here.

👉 https://www.nova.edu/nim/donations.html

#MECFS #POTS #Longcovid #SARS #MERS #chronicfatigue #MEActionNetwork

  continue reading

27 episoade

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